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Stage 3 Kidney Disease

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  • wfpbnewbie101
    replied
    I'm a 73 (almost 74) year old woman, dealing with hypertension for as long as I can remember. It wasn't properly controlled for many years. I'm currently on 3 meds that control it quite well. My cardiologist of 45 years never mentioned kidney damage previously, and didn't do blood work within the last few years and I foolishly never asked.

    3 months ago my cardio changed medical affiliations and advised me he no longer accepts my health plan. My new cardio did an EKG, ECHO and blood work on my first visit in July.

    I was shocked to learn that I have stage 3b kidney disease, high cholesterol, I was borderline diabetic, dehydrated and obese (178 lbs/5 foot 4 inches). My dad had kidney disease, was getting peritoneal dialysis and chose to end his life 30 years ago.

    My new cardio told me to drink a lot of water for the dehydration and have another blood test done in a week to check kidney function. Since I had spent the last year eating nothing but junk food (pizza, Chinese food, lots of egg rolls, tons of desserts) because I was caring for a sick pet and didn't care about myself at that point) I asked the doctor to give me a month. She agreed.

    The next day (July 14) I started a whole food plant-based diet and haven't deviated off the diet once. I began adding grilled chicken or some fish every day or every other day, because I became extremely dizzy and unable to walk when I cut out all animal protein. The same thing happened years ago when I tried wfpb with zero animal protein.

    On August 13 I went for another blood test. In July my GFR was 40 and creatinine 1.49. The August test showed a weight loss of 5 lbs, my GFR improved 2 points to 42 and my creatinine dropped to 1.42.

    I'm scheduled to see a nephrologist on September 27.

    My 6 month goal is to lose 25 more lbs (5 lbs a month) and for each 5 lbs increase my GFR 2 points and decrease my creatinine 7 points.

    The final result by end of December will be:
    Weight - 149
    GFR - 52
    Creatinine - 1.07

    I'm extremely motivation and need all the help, support and advice I can get to reach my goal.

    So sorry for this long post and thank you for listening.
    Last edited by wfpbnewbie101; 08-24-2021, 12:46 AM.

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  • Keepgoing12
    replied
    I am 62 and scared and feeling so overwhelmed. I was told my kidney function was not good at stage 3 and to go to the Internet and find a ckd diet. I was diagnosed with diabetes 7 years ago and pretty much have it controlled. Last A1C 6.0. In December 2012 I was diagnosed with breast cancer. 8 chemo treatments for 16 weeks, 1 lumpectomy and within 2 weeks was under the knife again for a bi lateral mastectomy, followed by 33 radiation treatments. I have severe anxiety and panic attacks, which attacks my coping skills. I gave this history to say this, I am so totally overwhelmed by trying to eat a diet that is suitable for these problems. My blood pressure is controlled and after a 2 night stay in the hospital I now know my heart is free of blockages, which I arrived at the hospital with chest pains and difficulty breathing. The cardiac work up relieved my panic of heart attack but did not address the difficulty breathing. I noticed my breathing trouble that came slowly. I have a high BMI and I attributed the breathing trouble with that and the fact I was tapered off klonapin being off for almost a month. I also have lost about 11-12 # in the last 4-6 weeks most definitely from cutting way back on food portions and choices. I have a very stressful job, 911 dispatcher for 17 years, and need to keep working as long as possible for financial reasons. I feel I am fighting a losing battle. It is very hard to find a diet plan that covers all the illnesses decreasing my food choices. Sorry this is so long, but am desperately seeking some advice and knowing I am not alone in this season in my life journey, but I really don't know where to go from here. Just need some reassurance that I can handle this if I set my mind that I can do this. Thanks

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  • hookedon126
    replied
    I'm also just DX with stage 3 kidney disease ready u all post is very helpful Mary

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  • KelseyAtDaVita
    replied
    [QUOTE=Pcampbell47;n101628]Hi everyone I'm new to the feeling of being lost about kidney disease. I am 68 years old and pretty upset by just finding out.
    I just found out I was at stage 3, Gfr was 43 a month ago and seems to bounce back and forth.
    I have checked back for five years on all blood work. Seems that the doctors all knew I had chronic kidney disease. But not one doctor suggested I see a specialist.
    I have had high blood pressure for years, of which was not controlled the way it should have been by some doctors. Then five years ago my heart Doctor finally got my blood pressure controlled. Now my new heart doctor says its to controlled.
    I do believe it's why my kidneys are in the shape their in. Meaning the doctors not controlling the blood pressure correctly years back.
    Beside in 2008 I had to have ACL surgery and the pain medications hadn't helped either.
    Right now I'm trying to cut the sodium, potassium and phosphorus from my diet, I drink plenty of water. I don't drink coffee, haven't for years.
    I'm just worried that it will get worse. Frankly I'm scared about the whole thing.[/QUOTE

    ​Hi Pcampbell47, welcome to myDaVita! I'm very sorry to hear about your recent diagnosis. i understand that you're going through an overwhelming time, however, you're in a good place to learn as much as possible about kidney disease. Have you considered attending a no-cost Kidney Smart class? It's another great opportunity to learn more about the disease, treatment options, a kidney-friendly diet and more. It's also a great time to ask expert educators your questions. You can find one near you here: http://bit.ly/2axNzHn.

    We do wish you the best and please let me know if you have any myDaVita questions moving forward. Have a nice day!

    Kelsey

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  • dac0214
    replied
    You don't really need to cut phosphorous or potassium unless your bloodwork says you need to at this point.

    Leave a comment:


  • Pcampbell47
    replied
    Hi everyone I'm new to the feeling of being lost about kidney disease. I am 68 years old and pretty upset by just finding out.
    I just found out I was at stage 3, Gfr was 43 a month ago and seems to bounce back and forth.
    I have checked back for five years on all blood work. Seems that the doctors all knew I had chronic kidney disease. But not one doctor suggested I see a specialist.
    I have had high blood pressure for years, of which was not controlled the way it should have been by some doctors. Then five years ago my heart Doctor finally got my blood pressure controlled. Now my new heart doctor says its to controlled.
    I do believe it's why my kidneys are in the shape their in. Meaning the doctors not controlling the blood pressure correctly years back.
    Beside in 2008 I had to have ACL surgery and the pain medications hadn't helped either.
    Right now I'm trying to cut the sodium, potassium and phosphorus from my diet, I drink plenty of water. I don't drink coffee, haven't for years.
    I'm just worried that it will get worse. Frankly I'm scared about the whole thing.
    Last edited by Pcampbell47; 08-15-2016, 10:37 PM.

    Leave a comment:


  • Lin1263
    replied
    I was told it was likely stage 3 kidney disease. I went to a Dr. at a clinic one week ago with severe pain and swollen feet that woke me up. The clinic opens at 10:00 a.m. I had another appointment and was there by 11:00 a.m. I was told to come back at 2 P.M. I then waited till 4:00p.m. The Dr. said my chronic kidney disease has spread to my liver and I must go to the lab for 14 tests immediately. I made it before they closed. I was told Dr. would call me next day on it. No call, so back to lab and they said Dr. is arranging for me to see kidney specialist A.S.A.P. Still waiting to find out when. I decide to try the Davita diet in the meantime. I will ask to see a kidney Dr. on my nutrition when I see the specialist soon. I was told specialist would go over all results with me.

    Leave a comment:


  • KelseyAtDaVita
    replied
    Originally posted by orangecity2015 View Post
    I am a male, 74 and recently diagnosed at stage 3. Doctor prescribed the pre-dialysis kidney diet. I too had to cut back on level of exercise as was making me too fatigued. I have had high triglycerides and cholesterol even on a low fat diet and taking medicine for it. Energy level is a problem but after 3 months learned to balance activity. I have lost almost 20 lbs on the diet and down to 150. and seems to have evened out. It can be frustrating at first but after a while becomes a lifestyle, but still can be frustrating at times Eating out is an adventure too.
    Hi orangecity2015, I hope you had a nice weekend! Adjusting to a new diet can definitely be a challenge but it sounds like you're getting used to it! Have you tried the DaVita Diet helper: http://bit.ly/1YihzIf? It allows you to plan and track kidney-friendly meals that stay on top of your nutritional goals. Let me know if you have any questions!

    Your community manager,
    Kelsey

    Leave a comment:


  • orangecity2015
    replied
    I am a male, 74 and recently diagnosed at stage 3. Doctor prescribed the pre-dialysis kidney diet. I too had to cut back on level of exercise as was making me too fatigued. I have had high triglycerides and cholesterol even on a low fat diet and taking medicine for it. Energy level is a problem but after 3 months learned to balance activity. I have lost almost 20 lbs on the diet and down to 150. and seems to have evened out. It can be frustrating at first but after a while becomes a lifestyle, but still can be frustrating at times Eating out is an adventure too.

    Leave a comment:


  • jsolomons
    replied
    Originally posted by KiwiKen View Post
    Hi, I'm a 67 year old male and have just been diagnosed with Stage 3a CKD. It would appear that treatment at this stage consists mainly of monitoring,exercise and diet changes. I'm working on that, but it is a bit of a challenge, so it is great to have the resources this site offers! I have cut out any additional salt, cut eating meat down to no more than 3 times a week and are steadily weaning off any processed food, drink, cakes, biscuits, etc. I also have cardiac arrhythmia controlled by a pacemaker..Both that, and presumably this, have been caused by chronic hypertension, so I am on plenty of medication for that. I can't see that changing. I would agree with a previous poster, one of the symptoms I have consistently noticed is increased fatigue. That is a bit of a challenge too, when I'm trying to increase my exercise regime. I still have a lot to learn (and apply) about sodium, phosphorus, protein and potassium intakes. I have been told that regulating potassium isn't necessary while my blood levels are normal, but I would appreciate some advice as to whether cutting down on potassium is a good idea while I'm changing my diet anyway?
    Hi, I am similar to you in that I am 69, am at Stage 3 but have known about the issue for a couple of years. Have tried very hard to "do the right thing" - lost weight, blood pressure under control (was high), have always exercised vigorously, and in most cases my diet has been within guidelines. Am now cutting back on the "bad" stuff - tomatoes, broccoli etc- very rarely eat red meat, but still need protein so am limiting to egg whites, yogurt, lean chicken and fish.

    I have cut way back on any alcohol - does anyone know if the occasional glass of wine (or two) is OK - or should I eliminate alcohol entirely? Thanks for listening - and thank you to all on this forum - as a "new boy" to this group I find it very comforting to be able to discuss a common problem with so many others.

    Leave a comment:


  • KelseyAtDaVita
    replied
    Originally posted by janeanne View Post
    I, too, was furious with my Doctor when I discovered I had stage 3 kidney disease and he hadn't said anything about it. I'm mollified to find my situation isn't unusual. My question is that I read that sea salt is much better for you than table salt, and wonder if I can salt my food a little with it?
    Hi janeanne, thanks for reaching out! I'm sorry to hear about your diagnosis but these forums are a great place to connect with others who are going through the same thing. It's important to know you're not alone, especially when adjusting to a new diet. Here's a blog post from our Kidney Diet Tips blog that you may find helpful: http://blogs.davita.com/kidney-diet-...-salt-part-ii/. It discusses ways to spice up foods without the use of salt. I'd also recommend speaking with a local dietitian to determine your individual diet and ask any specific questions, as everyone's needs are different. Let me know if you have any questions!

    Your community manager,
    Kelsey

    Leave a comment:


  • 1scaredycat
    replied
    Originally posted by janeanne View Post
    I, too, was furious with my Doctor when I discovered I had stage 3 kidney disease and he hadn't said anything about it. I'm mollified to find my situation isn't unusual. My question is that I read that sea salt is much better for you than table salt, and wonder if I can salt my food a little with it?
    Salt is salt. Do not substitute sea salt for regular salt. It is best to eliminate all added salt. When you do it long enough things will actually taste better. I used to be a salt person. I salted everything. I don't use any added salt now. Things really do start to taste good without it. Just for your info there is 2325mg of sodium in a teaspoon of salt. Usually in a low sodium diet you should only eat about 2000 a day. Just a pinch of salt is a lot of sodium to add. There is already sodium in everything.

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  • janeanne
    replied
    I, too, was furious with my Doctor when I discovered I had stage 3 kidney disease and he hadn't said anything about it. I'm mollified to find my situation isn't unusual. My question is that I read that sea salt is much better for you than table salt, and wonder if I can salt my food a little with it?

    Leave a comment:


  • KelseyAtDaVita
    replied
    Originally posted by KiwiKen View Post
    Hi, I'm a 67 year old male and have just been diagnosed with Stage 3a CKD. It would appear that treatment at this stage consists mainly of monitoring,exercise and diet changes. I'm working on that, but it is a bit of a challenge, so it is great to have the resources this site offers! I have cut out any additional salt, cut eating meat down to no more than 3 times a week and are steadily weaning off any processed food, drink, cakes, biscuits, etc. I also have cardiac arrhythmia controlled by a pacemaker..Both that, and presumably this, have been caused by chronic hypertension, so I am on plenty of medication for that. I can't see that changing. I would agree with a previous poster, one of the symptoms I have consistently noticed is increased fatigue. That is a bit of a challenge too, when I'm trying to increase my exercise regime. I still have a lot to learn (and apply) about sodium, phosphorus, protein and potassium intakes. I have been told that regulating potassium isn't necessary while my blood levels are normal, but I would appreciate some advice as to whether cutting down on potassium is a good idea while I'm changing my diet anyway?
    Hi KiwiKen! Thank you for reaching out! So happy to hear that you're finding helpful resources on DaVita.com and in the myDaVita community. DaVita.com offers a ton of kidney-friendly recipes and our blog, Kidney Diet Tips, has a lot of helpful diet tips as well. You can access the blog here: http://blogs.davita.com/kidney-diet-tips/ I hope this helps, thank you!

    Leave a comment:


  • Luckykitty
    replied
    I'm at stage 3b, have bipolar but my Dr said none of medicines were bothering my kikidneys. My problem all started with kidney stones, I even had to have a stent put in to drain my left kidney. I have lost 30lbs and always feel nauseous but my kidney Dr tells me not to worry,just quit loosing weight. Doesn't even have me on a special diet. Worried wondering if anyone feels there Dr is not being through.I have had this problem for at least 2 years years and was not informed..sorry for the adition. Thanks for listening
    Last edited by Luckykitty; 03-05-2016, 12:51 PM.

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