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  • Barry46
    started a topic how do you organize?

    how do you organize?

    My husband just got his port placed yesterday. I have been reading about the many supplies. I have no problems with keeping sterile room clean. I am interested on how to set everything up in my home and it still look like a home and not a shipping ware house. lol plus maybe some advice on how to organize his area where he will not have problems finding or getting to what he needs. Thanks!!!

  • pray105
    replied
    Originally posted by gloriaw View Post
    I am new to PD and I am struggling with the supplies. I live in a mobile home so don't have unlimited space. I have a walk-in closet that I use for the boxes of fluid. I have some heavy-duty shelves in the bedroom itself for the smaller boxes of supplies. One thing I did invest in is a platform bed that is 14 inches off the floor so I can store extra supplies under the bed. I have 2 rolling bins that I keep the cassettes in under the bed. I also get my supplies every 2 weeks. The thing I am finding challenging is the boxes of solutions are too heavy for me to move around easily. I live alone and don't have help doing this. The delivery people are good about putting the boxes where I want them but they do need to be rearranged as I go along. No one tells you how heavy this stuff is when you start out!

    Gloriaw - I have been using my rollator/walker to move the bags. My roommate suggested getting a beach cart/wagon to haul them in so am going to try that. I live in a manufactured home and have my delivery put in the Florida room. My nurse said it could be on the screened porch or shed also, as long as it could not get wet from rain. I agree the bags are heavy and I use a container for the drain which is heavy to lug with 8000cc in it...I have better muscles now than if I went to the gym...lol

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  • gloriaw
    replied
    I got a platform bed frame that is 14 inches tall so I can store supplies under the bed. Lifesaver!

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  • gloriaw
    replied
    I am new to PD and I am struggling with the supplies. I live in a mobile home so don't have unlimited space. I have a walk-in closet that I use for the boxes of fluid. I have some heavy-duty shelves in the bedroom itself for the smaller boxes of supplies. One thing I did invest in is a platform bed that is 14 inches off the floor so I can store extra supplies under the bed. I have 2 rolling bins that I keep the cassettes in under the bed. I also get my supplies every 2 weeks. The thing I am finding challenging is the boxes of solutions are too heavy for me to move around easily. I live alone and don't have help doing this. The delivery people are good about putting the boxes where I want them but they do need to be rearranged as I go along. No one tells you how heavy this stuff is when you start out!

    Leave a comment:


  • erkyl77
    replied
    I have a small 1 bedroom apartment, getting shelf definitely helped with organizing the supplies.

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  • fndparts326
    replied
    great info you guys thats so much

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  • 813linda
    replied
    Thank you Loganwon &stumper54 for your very detailed answers. As a caregiver to an almost on dialysis husband, finding clear answers to questions is practically impossible. I find that other patients are more likely to understand what you need to know, and to take the time to respond. Mostly what you get from Da Vita etc. Is a pat answer , and they say go ask a dietician or your nephrologist or whatever. Understandable that everyone is different, but I have been looking for 2 years foe info onwhat foods a person in different stages of. Kidney disease should eat ,and it is all so generalized. I can't find a dietician that specializes in kidney disease, his nephrologist is useless to talk to unless he's prescribing meds. No info whatsoever. Anyway, thank you for giving a detailed answer to someone's question. It helps everyone who reads it!! 😊

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  • CFranklin
    replied
    5-8 years on PD only. I was under the impression it could last 15-20 years

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  • Loganwon
    replied
    You got me thinking. I am wondering if the dialysate that I use for Peritoneal dialysis could be made by the NxStage Pureflow SL also. I will have to call the company and ask them. Why? Because the so called Social Workers and Dieticians that work for Davita are next to worthless. I have emailed these "people" that are supposed to work for Davita and they rarely get back to you. The Dieticians have never gotten back to me with any answers.

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  • Barry46
    replied
    thank yall for the advice!! We will get our first delivery on the 18th!

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  • stumpr54
    replied
    HHD supplies take up even less space, provided you are using NxStage's Pureflow SL to produce and store the dialysate. The NxStage System 1 Cycler sits on top of the PureFlow SL, which is 30" long by 20" wide by 30" tall. The cycler adds another 20" in height.

    Roughly two weeks of treatment supplies can be kept on two shelves and a small footprint of floor in a closet. Bulk supplies of cartridges, dialysate SAK's, water purification PAK's, pre-mixed dialysate (travel and back up in the event of PureFlow SL failure) and treatment supplies are kept in our basement.

    A typical monthly supply delivery from NxStage consists of 5 cases of SAK's (2 SAK's per case, 2 treatments per SAK) and 4 cases of cartridges (6 cartridges per case, 1 cartridge per treatment). The bulkiest supply item from the HHD clinic is a case (14 ea. 1 liter bags) of IV Saline for priming the NxStage System 1 cycler cartridge and lines. A single 1 liter bag of saline is required for each treatment. The balance of HHD clinic supplies include: alcohol pads, gauze pads, 10 cc syringes, band aids, paper tape, Chux, and 15 gage dialysis needles. The supply quantities of these items limit the monthly requirement to mostly gauze pads and needles. The other items are replenished every 2 to 4 months and take up very little space. All of this "inventory" is rotated and used on a first in, first out basis, which drives the practice of preventing excessive supply quantities.

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  • Loganwon
    replied
    My Baxter driver has it easy also, through one door and drop em off. It really is not that big of a deal.

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  • mamasanford
    replied
    We bought an entertainment centre, lots of storage for all medical supplies plus the cycler sits on the TV shelf with adequate room for dialysis solution bags. After clean-up in the morning, close the doors and you would never know a dialysis patient slept in the room. Storage of boxes however is another matter, we've repurposed what was supposed to be a sunroom/play area for grandchildren. Delivery truck driver loves it as he only has a short distance to walk to stack boxes against wall. I now say that our decor theme is "Baxter"

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  • Loganwon
    replied
    Originally posted by Barry46 View Post
    Thank you! Yes it is pd dialysis. We do live in an apartment, but I think it will be big enough for that amount of supplies!
    It will seem like a lot at first, but the only boxes that can't be condensed are the ones with the actual liquids inside. The medical supplies, masks, caps, etc come in bigger boxes than they need to be kept or stored in, don't worry you will like PD, it is a wonderful system, just remember that you can't do PD forever, 5 to 8 years is the average then the peritoneal membrane wears out, actually it becomes thicker over time. The higher amount of solution you use wears it out faster. In other words the 4.5 is worse for you than the 2.5 or 1.5 solutions are. Also getting peritonitis is very bad because it scars the membrane, so be careful about keeping things sterile. Good luck.

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  • Barry46
    replied
    Thank you! Yes it is pd dialysis. We do live in an apartment, but I think it will be big enough for that amount of supplies!

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