Announcement

Announcement Module
Collapse
No announcement yet.

Last meal of day before P.D

Page Title Module
Collapse
X
  • Filter
  • Time
  • Show
Clear All
new posts

  • Mri2020
    replied
    Good evening
    My name is Liliana and my husband is a new patient with stage 4 renal failure, and congestive heart failure. He?s getting dialysis 3 times a week. I read most post about different experiences most are going through as I am educating myself to help my husband. Soon he will be on PD. My question is if anyone has experience being dizzy most of the time to where you lose your balance? There are times that he can?t hold any food down and he feels dizzy when he gets up. I reached out to the doctor and have advice to lower his high blood pressure medication. Also has anyone has congestive heart failure? He has a doctors appointment in December to check his heart because from what I was told, the heart also gets compromised.
    Thank you and I hope someone can relate to what we are experiencing right now with this disease.

    Leave a comment:


  • marysunshine
    replied
    I am the caretaker for my 82 year old husband, who was diagnosed with CKD about 16 years ago. His GFR is currently at 11. I diligently calculate the nutrients in his diet, and he has an excellent appetite, feels well, and has no symptoms except some fatigue. We think his fatigue and shortness of breath on exertion is due to his long-standing, quite advanced COPD. He occasionally uses oxygen during the day for a while, and off and on during the night. He urinates fine and has no swelling. His nephrologist has said when his GFR reaches 10, he will probably need to go on dialysis. Our plan is for manual PD, but we were unaware of these difficulties as detailed here. Since he has lost most of his vision, his meals are one of his major pleasures. I am a good cook, and I serve tasty, healthy meals. We eat twice a day, a big breakfast and a fairly big supper. At present, the nutritional limits we are using are 70-80 mg. protein, 2000 mg. sodium, 1500 mg. potassium, and 1000 mg. phosphorus. On manual PD, will we have to expect these problems of decreased appetite due to fullness, n/v, etc., or is that just on the cycler?

    Leave a comment:


  • MollyHernandez
    replied
    Agree! My eating schedule has had to change, somewhat. Certainly can’t eat the way I used to or what I used to. And can’t eat to close to start of treatment, at night. Almost feels like my food is just sitting there.

    Leave a comment:


  • patricia0805
    replied
    you all do know thar you must limit your sugar content in your meals just before pd or it wont work.

    Leave a comment:


  • garydacus
    replied
    I have been on PD for about a year and a half. I was on Henmo for 2 years prior. I eat a snack right after I hook up, usually a piece of fruit of some kind. I never feel bloated but I always sleep at an angle to make sure I get full drains. I eat 2 good meals per day and 2 snacks. I also watch my lab results online to make sure i am following the diet plan. I never eat yogurt or dairy-based items to keep the phosphorus down. I hook up around 7 pm at night to be finished around 4. That way I can clamp off and sleep a few hours anyway I like.If you do a manual in the day I would watch to see if it is extremely large and could not be draining good each time on the cycler

    Leave a comment:


  • Asttaw56
    replied
    Thanks for the HEADS UP! I am going to start PD dialysis in another month so I am grateful for all of the advice. I work until 7:15 pm and usually eat dinner late. But after reading about all of your experiences, i'm starting to change my eating habits now. This forum has been really helpful for me since I am new to dialysis. Thanks

    Leave a comment:


  • MichelleDaVitaRN
    replied
    smennolly some things to consider discussing with your nephrologist may be the following: Nausea and vomiting can sometimes be related to the need for increased dialysis. Reviewing your adequacy labs and dialysis regimen with your PD team may help to relieve those symptoms. Some diabetics experience gastroparesis which means your stomach isn't emptying as it should which can also lead to nausea, vomiting and heartburn. Small meals during day and staying upright for period of time after each meals is helpful as well as elevating your head at bedtime. Schedule time with your renal dietician to ensure you are maximizing your dietary intake each meal and adding snacks to ensure you are getting enough intake to satisfy hunger and avoid adding to your current symptoms. Heartburn is another area that should be addressed with your nephrologist and may be related to several different things such as medications, diabetes, diet and other co morbid conditions. PD is a great modality but as your health changes or you experience symptoms please reach out to your nephrologist and PD nurse so they can address your concerns. Thank you for posting your comments. I am sure it helps others who may be experiencing something similar.

    Leave a comment:


  • smennolly
    replied
    for YEAR my pd went well but now I am not so sure. I throw up a lot. I am always pretty hungry yet find it hard to eat and suffer badly from heartburn. I try to eat early but takes so long cooking and oreparing.

    Leave a comment:


  • SherbearTC
    replied
    My husband is 2+ years in on a nightly cycler. He eats twice a day, morning breakfast and then our 'big' meal (often just a sandwich and fruit) by 2:30. If he eats after 3 in the after noon he's miserable and does not get a good drain. It's just our reality and we've adjusted. Most days I kinda like not having to deal with cooking and dishes at night. Sure is a departure from the days of raising 5 kids and nightly family meals around the table.

    Leave a comment:


  • MichelleDaVitaRN
    replied
    Hi RichardSResnick and thanks for submitting your question. The symptoms that you may experience can be dependent on the cause of your kidney disease. I can certainly provide some general symptoms related to kidney disease stage 4 that you may or may not experience. All changes in your health should be reported to your nephrologist regardless of severity or frequency because reporting any change can help to determine progress of your kidney disease and best approach to address. Symptoms of kidney disease at stage 4 can include fatigue, nausea, vomiting, fluid retention, metallic taste in mouth, restless legs and difficulty sleeping. There could be other symptoms that are related to your specific diagnosis, so anything unusual that you experience should be reported. Some symptoms can be managed with medication changes or dietary adjustments. Regular blood work is common at this stage which helps to monitor your kidney function and stage of kidney disease. Good luck in your journey and don't hesitate to reach back out with questions.
    MichelleDaVitaRN

    Leave a comment:


  • RichardSResnick
    replied
    I joined 4/1/2017. I have stage4 renal failure and I'm 84. So far I fell OK and wonder what I will feel like when my GFR gets below 15 (23 now).
    ​Can someone tell me the side effects of this disease at this stage? like back aches, hard to urinate other maladies? Thanks in advance for any response.

    Leave a comment:


  • kyle1960
    replied
    Hi everyone...My kidney disease was discovered in June 2015...I started my home dialysis (PD) a month later...Although at the time I didn't recognize it but my appetite was slowly leaving me...I didn't have a taste for anything and red meat has gotten to the point where I cant look at it and for a Texas boy that's unheard of...So I understand you when you say that eating late will only make you feel bloated for hours during your treatment, truly uncomfortable...So I wouldn't eat, BAD IDEA...I tried some of the kidney-friendly recipes and that worked for a bit but my taste buds didn't want anything but water...My family and the Da Vita nurses suggested that when I do eat to make it count (eat protein)...I've gotten to where I forced myself to eat...In the evenings during my treatment if I get those hunger attacks (cramps, pain) I eat an apple that I keep nearby and so far that's doing the trick...With my appetite still acting funny I noticed that my lab works are showing it and I believe its cause I'm not getting enough carbs...So the battle continues, eat when I don't want to eat...Something don't sound right about that (smile)...God bless us all...

    Leave a comment:


  • LittleKimmy13
    replied
    Tell me about it ..... I'm a APD patient I've been doing it for 5 years. I'm only small so the amount of fluid that goes In, i feel that full I can't even sit up without it hurting. That's if I don't eat. If I eat just before bed it makes me feel sick and wanting to vomit. So I don't eat much at all.

    Leave a comment:


  • jpfontaine
    replied
    Thank you all for this discussion as I can relate to it all.

    Leave a comment:


  • DonCLeo
    replied
    My last meal ends 3hours before my treatment starts. If I don't stuff myself then I
    am comfortably during the night,

    Leave a comment: