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  • sapphire
    replied
    Re: Today was my first day of dialysis...

    Thanks for sharing , I as well taking PD training and is going good,the first time I got the 2 litters was ready to blowed out my abdomen, I felt very uncomfortable,the follwing date I took in 1800 mls , less than the 2 lts and felt better, my nursse told me s I keep doing it I will be feeling less presure, I feel better knowing I am not alone.

    Blessing to ALL
    Sapphire

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  • aarenjames
    replied
    Re: Today was my first day of dialysis...

    oh god...its really painful...but by the grace of god u r strong enough..wish u all the best:-)

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  • Marina
    replied
    Re: Today was my first day of dialysis...

    Originally posted by patty0805 View Post
    Hi Swagerr, 2 liters, hmmm, are you "normal " size? I'm 5ft tall and they filled me up with 2 liters also, I felt stuffed. I complained but they said that was "standard". I did not like that answer. I chose to drop down to 1,500 cc's , the neph wasn't happy about it but he wasn't carrying the weight around either. it works for me . check with your PD nurse if changes need to be made if you continue to feel umcomfortable. One size does NOT fit all.
    Hi Patty,

    when I first started PD I used 1500. Within a month my nurses decided to try 2000. I'm only 4'11" I have no problem with 2000 at all.
    Only time I feel any discomfort is when I use 4.25% ( "red" top ) solution. But only at the beginning. I asked my nurse about this, she said it's due to the fact the 4.25% pulls water at such fast rate. Luckily I hardly ever use "red" solution.

    How is your KT/v ?? are you getting adequate dialysis? do you need to do an extra exchange to make up for the difference?

    Take care

    Leave a comment:


  • Marina
    replied
    Re: Today was my first day of dialysis...

    Welcome to Davita, Happy!!!!!!!!!!!!

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  • patty0805
    replied
    Re: Today was my first day of dialysis...

    Hi Swagerr, 2 liters, hmmm, are you "normal " size? I'm 5ft tall and they filled me up with 2 liters also, I felt stuffed. I complained but they said that was "standard". I did not like that answer. I chose to drop down to 1,500 cc's , the neph wasn't happy about it but he wasn't carrying the weight around either. it works for me . check with your PD nurse if changes need to be made if you continue to feel umcomfortable. One size does NOT fit all.

    Leave a comment:


  • jeffmoore
    replied
    Re: Today was my first day of dialysis...

    Originally posted by Hazmat35 View Post
    Good afternoon,

    Wednesday (5-5-10) was my 1st day at the Dialysis Center in Winter Garden, FL. I have had [4] treatments the week before while in the hospital. Today, Friday will be my 6th Treatment.

    I have been to this facility prior to Dialysis, to check it out and see things. I new that Dialysis was coming, so I starting doing research on all the local facilities. This one, in Winter Garden, FL is brand new and real close to me and is between my house and my job.

    Everyone at the Davita center was so nice and helpful. They all new that I was scared to death, and made me feel very comfortable and at ease. They bombarded me with helpful and very useful tips of the trade. I have to say that my 1st experience at the center was nothing less than fantastic.

    I had a 3 1/2 hour session and afterwards, I felt a little light headed but not too bad. Felt good enough that I went to the grocery store and drove myself home.
    Way to Go Girl, or Guy, I don' t know what gender you are, but it is great that you don't let this interfere with your normal life. And how fortunate you are, to start your dialysis at a brand spanking new unit. Keep us posted on your progress, and just remember there are many of us on this forum, that have many years of dialysis history to share, there will be someone that could relate to any of your plight with dialysis, as we all had a beginning, and truly understand there are uncertainitites where this very unique life is concerned.

    Glo

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  • gavignoni
    replied
    Re: Today was my first day of dialysis...

    Today was successful! The exchanges went well and I didn't have any pains I feel like an old pro now!

    I also discussed my eye issue with the doctor and he sent for an opthomologist right away. He did some initial tests by my bedside and then escorted me to the eye care center up the street after dialysis. Upon further testing and evaluation, he said my retina was showing substantial inflammation and there was fluid in the eye. He doesn't think it's kidney related but actually Lupus related?? My Lupus has been in remission for several years so it was quite a surprise to hear him say that. I will have to follow up with another eye specialist and see my old rheumatologist in the next few weeks. Just when you think things are going smoothly.... Oh well. It is what it is and I will be monitering myself and following up as best I can.

    Thanks and welcome to SteveO and Hazmat35! Please keep us posted on your progress as well. I wish you both luck in your journeys

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  • SteveO
    replied
    Re: Today was my first day of dialysis...

    Originally posted by gavignoni View Post
    Today I went in for my first full day of dialysis...it was interesting. They filled me with 2 litres of solution which seemed like a lot. I was so full I felt like I was going to explode! After about 10 minutes of dwelling I felt better because the nurse said the liquid disperses and spreads out. The draining felt really good until close to the end when I started to feel a weird cramp and sharp pains in my abdomen which apparently is the "suction" effect against the peritoneal wall. After a couple of exchanges everything was going smoothly until after the drain I started to feel some pain in my right shoulder / neck area. It quickly spread to my entire right side and I had a REALLY bad cramp. I was actually writhing in pain and found it difficult to breathe! The nurse wasn't sure why I was feeling this but explained there could have been air in the tube which hit some nerves? It was really bad but then it went away as quickly as it came. Later on in the afternoon it hit me again one more time and it was awful. I actually had to have some painkillers. Has anyone else experienced this??? My tube is on my right side but I don't have any pains or discomfort associated with the exit site and these cramps seem like something unrelated. The nurses said air in the tube was highly unlikely too with the way the set up is.

    I really hope this isn't something that I will have to go through every time I'm back on Wednesday and Friday so we'll have to wait and see I guess. The next few weeks will be a bit of an adjustment period of course so hopefully we'll get the "kinks" out

    On another note, my sister is proceeding with further testing as her blood type is compatible and she is the front runner as a potential donor! Wow.

    Gina
    Thanks for sharing your experience. I'm having surgery this Monday to have a fishtula placed, and I will be starting dialysis very soon. My GFR is a 13, and falling by one point a month. one year ago I had GFR of 30. It dropped like a rock over the past year. I have Berger's disease. Anyway, I wish you all of the best with your renal replacement therapy. Hopefully, you will feel a bit better each subsequent time. Take care...

    Leave a comment:


  • Hazmat35
    replied
    Re: Today was my first day of dialysis...

    Good afternoon,

    Wednesday (5-5-10) was my 1st day at the Dialysis Center in Winter Garden, FL. I have had [4] treatments the week before while in the hospital. Today, Friday will be my 6th Treatment.

    I have been to this facility prior to Dialysis, to check it out and see things. I new that Dialysis was coming, so I starting doing research on all the local facilities. This one, in Winter Garden, FL is brand new and real close to me and is between my house and my job.

    Everyone at the Davita center was so nice and helpful. They all new that I was scared to death, and made me feel very comfortable and at ease. They bombarded me with helpful and very useful tips of the trade. I have to say that my 1st experience at the center was nothing less than fantastic.

    I had a 3 1/2 hour session and afterwards, I felt a little light headed but not too bad. Felt good enough that I went to the grocery store and drove myself home.

    Leave a comment:


  • Marina
    replied
    Re: Today was my first day of dialysis...

    Originally posted by gavignoni View Post
    On another note, I've noticed my vision (right eye) has been deteriorating in the last few months and the last few weeks have been particularly bad. I find it blurry with dark spots like when you catch a flashbulb going off. I've been told this could be due to the kidneys and all the toxins that have built up in my system. My question is has anyone else had their vision effected and did it improve with dialysis? It's really scary and I hope it's temporary
    I had never heard about the anesthesia affecting vision. kidney failure affects the eyes too??? this is all new to me.

    You say that the eye prob has been getting worse in the last few months, I would recommend you see an opthomologist to make sure there's no bleeding in the back of the eye. Just a precaution.

    Hope dialysis is getting better for you!!

    Take care!

    Marina

    Leave a comment:


  • patty0805
    replied
    Re: Today was my first day of dialysis...

    FYI, it can take several days for the air to disperse inside you :-( good that you are now being on your guard !!

    Leave a comment:


  • gavignoni
    replied
    Re: Today was my first day of dialysis...

    OK, I'll keep bugging them....thanks. It wasn't as bad as Monday so hopefully it's just left over air and it's subsiding.

    Interesting about your vision experience. I haven't heard anything about anesthesia doing this. I really hope it clears up soon. The doctor is going to talk to me on Friday about it so I'll see what he says.

    THANKS AGAIN!

    Leave a comment:


  • annie
    replied
    Re: Today was my first day of dialysis...

    Oy.

    Keep pestering the nurses/your doc about that pain. It really does sound like air, but I am not a doc, so you should keep on bugging them. (I will say that when I was in the hospital last year and got a WHOLE bunch of air in me -I was out of it and didn't prime the line at all, really- it took about a week for it to go away).

    I'm sorry you are dealing with this, it truly does stink.

    AND- The last time I had catheter surgery, I had vision problems for almost two weeks (Blurry, unable to focus, etc.). I called every single person on my treatment team-including the surgeon- and none of them had any idea what that was. One nurse suggested that I might have some mucous in my eye...Um, no.

    I have read that some of the anesthesia can do this, but couldn't get any of my health care team to admit that....?

    It did clear up in a couple weeks.

    Good luck,

    A

    Leave a comment:


  • gavignoni
    replied
    Re: Today was my first day of dialysis...

    So today went really smooth and I was really happy up until I left. After the final drain and getting my things together, I was heading to the parkade (15 mins later) and the pain in my shoulder came back! I started getting nervous and next thing I knew I was in a lot of pain with the cramps on my right side again I had to lay down in my car for half an hour. What is going on?? Is this residual air from Monday?? Today's exchanges seemed fine I noticed the lines were being primed properly....

    On another note, I've noticed my vision (right eye) has been deteriorating in the last few months and the last few weeks have been particularly bad. I find it blurry with dark spots like when you catch a flashbulb going off. I've been told this could be due to the kidneys and all the toxins that have built up in my system. My question is has anyone else had their vision effected and did it improve with dialysis? It's really scary and I hope it's temporary

    Leave a comment:


  • gavignoni
    replied
    Re: Today was my first day of dialysis...

    Wow who knew air was such a bad thing? I really don't even know what to look out for because I haven't been trained on anything. They are doing the initial exchanges for now and I will start my in depth training in a couple of weeks. I will make sure to ask plenty of questions tomorrow and watch carefully. Come to think of it Patty, one of the nurses seemed a little sloppy and not as efficient as the other two so who knows?

    Thanks everyone for the input...I was so afraid that this was the "norm" and I would just have to put up with it. Good to have some sort of explanation. I will chalk this up as being all part of the learning curve

    Gina

    Leave a comment: