Fabry Disease

[ACHAFFIN]

Is there anyone out there with Fabry disease along with ESKD? My husband is the one suffering from these terrible diseases. We found out six years ago only after he had a heart attack that he also had kidney failure. When he was diagnosed he was already stage 4 with only one kidney functioning. He 's been on home PD for 3 years. I read many of the forums and seems everything he is going through is pretty much similar to everyone else problems. I'm curious if their are others out there also with Fabry Disease and is anyone experiencing severe back pain, nausea, extreme leg weakness?

[smennolly]

I have severe back pain, nausea and weak. Also tired all the time. do you have any solutions.