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  • mab
    started a topic after dialyzing

    after dialyzing

    I know my husband feels like his entire body is buzzing after diaylsis ... and quite often legs are cramping. He also complains of his feet and hands feeling like they are on fire.
    We believe that thay keep putting the flow rate to high. we have had one tech get it right .. and as long as we he has had her ... he has had a good treatment. But they can't seem to share the information with each other .. so if that tech is not there ... it's back to having the bad treatments.

  • 10greatgrandchildren
    replied
    can anyone tell me the absorption rate of the sponges that they use after pulling the needles? Also trying to find out how much blood is lost after the usage of three to four sponges being soaked through before clotting. and how much blood is left in the syringe after they check for resistance of the graft that is in my leg.. is it enough for an anemic patient to be worried about?

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  • kcramer
    replied
    I got the report from the CT. The doctor said there was a very large cyst which is what is causing the pain. Two opinions were given.
    1. drain it where a urologist will go in and drain it but the liquid will fill it again.
    2. Have it surgically removed.
    I didn't not make a discussion. I told him I would wait for it to pain me all the time.
    What I really wanted was time to think and find out what is involved and what would be better. I had always hoped a kidney would come available before I would have to decide. Then I would ask the surgeon to take care of that large cyst.

    So any stories or knowledge would be welcomed.

    The doctor didn't tell me how much they weigh but when I said something about at least five pounds each his assistant who was close to me said a lot more. The doctor was looking at information deciding on information the nurse was showing him.

    I now have two very successful treatments with no clods and no pressure problems since Oct. 17th.
    .

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  • pioneer07
    replied
    Weariness, where you feel tired and depleted constantly, is a normal reaction in individuals who have utilized both haemodialysis and peritoneal dialysis on a long haul support. Exhaustion is thought to be brought about by a mixture of:

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  • rickster12
    replied
    I have had issues with low BP and cramping but at my DaVita, they are very good to adjust the flow as needed to alleviate the cramping (which has not been that bad even when I had it).

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  • DevonTexas
    replied
    It is not acceptable that you should have such experiences. That "challenge" thing is meaningless! One thing is they could be taking too much fluid off or they could be taking it off too quickly. As advised above, talk to the Social Worker and/or the head nurse. Once those are complete and, if you haven't come to a successful conclusion, call the ESRD Network. Here's a like to the website that will help you find your network by area. http://www.esrdnetworks.org/ Once there, click on your area and get the phone number. Call them and let them know you'd like to make register a complaint against the center. Action should happen very quickly. Good lick and I'm sorry you must suffer this!

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  • kcramer
    replied
    My BP dropped twice where I saw blue dots and had to be given liquid to bring the BP up. Only been on dialysis two months. They changed my dry weight immediately. Suggestion since your mom must not be able to let them know when she feels the drop or they are not around from her to call before she passed out...stay with her and look at the BP when it is taken every 30 minutes or less. If it drops, call the tech over. There should be a social worker there that you can complain. There is also a place you can call which someone had on this site once but I don't know it. Someone else out there should help you.

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  • MomandDaughter
    replied
    Hi I'm new to all this Dialysis, because my Mom has to have treatments. She has been sent to ER 3 times after having treatment because she is being "challenged"...they take to much fluids when her dry weight is low...I'm so angry because this last time, Dec 6, 2013, she had treatment she had a severe stroke and we almost lost her....CPR had to be done on the way to ER...the time before that Oct 2013..she told the tech she didn't feel right..that they took to much fluids...she had a stroke..and was rushed from Davita to ER....I have her Dr. looking into this and to get me some answers...I don't understand the dry weight and how much fluids is to be taken..and why the tech has authority to "challenge" a patient ...any information would be helpful..as my Mom is paralyzed now on her right side from this last stroke...

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  • Hoofpkr
    replied
    Home-hemo is far better than in center. You can slow the rate soo you don't have as many issues with cramps, you can add a little sterile saline. The patient can then have a heating pad, a heated blanket and Micro avaialble neck wrap. These thing make the process more bearable, not to mention you might be able to read or listen to your Bible or music or just watch the tv shows you like. The centers can't offer these thing as it might be a safety concern for them.. The flip side to home-hemo you are the technician running the machine, and cleaning it also doing the blood tests and water samples. Nextstage has excellent support people 24/7 This is not intended to be medical advice;consult your doctor and clinic. I have been doing home-hemo for over 3 years. I pray you will not be overwhelmed by the home-hemo. There is a Savior called Jesus who can calm your anxious heart. nI am confident of His mercy and grace. Good Luck. I will pray for this to be successful. Hoofpkr

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  • chadryerson7
    replied
    I too, have a problem with the DaVita location I use. We have additional problems than what you mentioned. I am in the process of collecting all that I have logged for myself in order to send a complaint with someone else I know, so that hopefully something will be done at several locations here. I am so fed up with what I have to deal with every time I go to dilaysis and my desire is to do PD @nite while I sleep.I get to the place I do not want to go to dialysis because of the situation there. I came home from dialysis nearly in tears last week...that is not good.
    So I want to encourage any one that has any kind of problem with DaVita in general(staff or whatever) keep a log of some kind of what is or is not going on, and take it to the office mgr if possible. There should be a poster in the unit with a 1-880 number to complain if you do not feel you can talk to anyone there. You could complain to the state also, and theyy will investigate. Maybe that is what needs ot be done with DaVita....Do they KNOW what is going on in their units???

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  • Marlene496
    replied
    My husband is very confused after dialysis - he also has COPD and heart valve problems called severe aortic stenosis. Does anyone else feel this way after their treatment.

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  • Teddy Bear1954
    replied
    I am the same way as your Mom my hrs are 2 1/2 I get cramps everywhere if I move my blood pressure goes way down towards the end make sure no sodium intake,salt in diet might if she takes blood pressure meds to take after treatment I know how she feels been off and on dialysis for 20 years I am tired of it but I drag myself and go they might be taking off to much in those 2 hrs 2.2 or 2 and if she is way up over her dry weight have a extra treatment of a puff where they just take fluid off

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  • Teddy Bear1954
    replied
    I know the feeling sometimes I do ok and other times I feel bad I am really little and can't not take off to much if they are tying to take off to much in 3 hrs givin his time maybe he should come back for an extra treatment and to a puff get the fluid off and he will feel better have him to a puff treatment that is where they take off just fluid

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  • Radioman
    replied
    MAB
    Better late than never I guess. (Your post is 2 years old; if you haven't resolved your situation yet, don't give up). As you have discovered, not all tech's (or Dr's) are created equal. If you can find a good Nurse/Trainer, look into home hemo. Dialysis at home gives you much m9ore control and understanding of what happens during treatment, and is much easier on your body. I know of one nurse/tech that had no idea of how to set the machine (or how to teach the patient) to remove the correct amount of fluid. Luckily I had a very capable, knowledgeable, patient nurse/trainer who was also an excellent instructor.

    Good Luck
    Radioman

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  • Hoofpkr
    replied
    Dear Friend,
    I am sorry your poor husband is having difficulty with his treatments. It can be trying and in center is hard on everyone. Does he have some water or ice chips during treatment? That may help some. Try to have him stay close to his dry weight so they will not have to pull so much so fast. Iknow the centers have their protocol but please voice your concerns and see if they can work with you. Dialysis is cleaning your blood so you want to feel better not wiped out. Help him keep his mind active with something to look forward to after Dialysis. Read encouraging words to him from the Bible before he goes. You will both be encouraged by the Holiness of God. Hoofpkr

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