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The Girl Born Without a Face

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  • The Girl Born Without a Face

    I am lucky to have been born with an unknown amount of optimism. I don't know why, how, who, what, where, or when this happened, but I know I've always noticed the upside of anything that happens to me. (It's sickening, isn't it?)

    I've always thought to be alive is a bonus because some day we will all be dead, no matter how we live. Right? So, we might as well enjoy every second we have, whether it's crummy or awesome because each second leads to the pathway of the discovery of our lives. So enjoy the ride!!

    But, like anyone else, when I first started my journey down the road of pre-transplant tests, swollen feet, and early dialysis, I'll admit... I started to feel a little down.

    "Enough is enough!" I thought to myself. "I've dealt with enough crap in this lifetime and now DIALYSIS?!? . When will it let up?"

    And then my girlfriend and I watched a TV show about a little girl born without a face.

    It was heart wrenching. This little girl named Juliana Wetmore was born without a face. You can read about her and see pics here: http://www.julianawetmore.net

    To hear her parents talk about her, and to see her interact with her siblings is phenominal. Her positive attitude and inner strength shine brightly. She doesn't have a face, she can't eat like normal people, and she requires round-the-clock care, but you wouldn't feel bad for her if you met her. She's alive! She's brilliant, and she has a strong, positive personality.

    After watching half of the television program, I thought to myself, "Jake, are you telling me you're gonna sit there and feel sorry for yourself because you have to be hooked up to a machine a few hours a week when this little girl born without a face is excited to be alive? HOW DARE YOU!"

    Yeah! How dare I..? So I wiped the tears from my eyes and vowed to think of Juliana Wetmore if I ever got down on myself again. Because if she were sitting next to me while I was hooked up to the dialysis machine, she would draw me a picture of her family and show it to me and I would see how happy she is to be alive.

    And isnt' that all we need, a little joy? I think it is.
    http://jakekpt.blogspot.com

  • #2
    Re: The Girl Born Without a Face

    Hey it can't be said more emphatically than that... can it?

    Comment


    • #3
      Re: The Girl Born Without a Face

      Good for you! You have a good attitude.....Celebrate that you have a face! Your kidneys may be shot but at least you can chew, swallow, blow your nose. What a comparison.
      But I have a question for you: Would you change places with that faceless child?

      I really think it is sick when you think you should feel better because all you have to do is sit in a recliner and watch t.v. while on dialysis and compare yourself with a faceless, happy child. And just how do you think this child of God is going to 'face' life as she grows into a teenager.












      Impossible? Nonsense!!!

      Comment


      • #4
        Re: The Girl Born Without a Face

        Jake, I admire your attitude. We could all use more of the same strength as the child and her family.
        May you always have Love to share, Health to spare, and Friends that care


        Acute Kidney Function Loss 12/07 - GFR 39
        Current GFR 46 - Stage 3 - Controlled HBP

        Comment


        • #5
          Re: The Girl Born Without a Face

          Originally posted by renalwife View Post
          Good for you! You have a good attitude.....Celebrate that you have a face! Your kidneys may be shot but at least you can chew, swallow, blow your nose. What a comparison.
          But I have a question for you: Would you change places with that faceless child?

          I really think it is sick when you think you should feel better because all you have to do is sit in a recliner and watch t.v. while on dialysis and compare yourself with a faceless, happy child. And just how do you think this child of God is going to 'face' life as she grows into a teenager.
          I believe you missed my point completely.
          http://jakekpt.blogspot.com

          Comment


          • #6
            Re: The Girl Born Without a Face

            Originally posted by Tonia View Post
            Jake, I admire your attitude. We could all use more of the same strength as the child and her family.
            I agree with you 100%, Tonia!
            Thanks!!
            http://jakekpt.blogspot.com

            Comment


            • #7
              Re: The Girl Born Without a Face

              I totally agree, Jake!

              I watch Discovery Health Channel all the time, and pretty much everything shown on there is worse than what I deal with daily.

              (Treeman.)

              Keep it up!
              Diagnosed Stage 2 CKD (lupus) 1985
              PD March 2009-present
              On Transplant List
              Husband is a match (undecided about that for now)

              Comment


              • #8
                Re: The Girl Born Without a Face

                Jake, I think I love you!
                Glomerulosclerosis of undetermined cause, nephrotic syndrome, stage 5. In-center hemodialysis after failed placement of PD catheter.

                “Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think." - Christopher Robin to Pooh

                Comment


                • #9
                  Re: The Girl Born Without a Face

                  I love you too, Wordwizz!!
                  http://jakekpt.blogspot.com

                  Comment


                  • #10
                    Re: The Girl Born Without a Face

                    Jake, I read your story on the blog. There were some kinda graphic, private but funny moments mentioned. But I love reading the "Real Deal' experiences you had. For pre dialysis patients we have anziety about what to expect. You were able to shed some light on the reality of it. I appreciate your time spent on this and you sharing it with us.

                    Toni
                    May you always have Love to share, Health to spare, and Friends that care


                    Acute Kidney Function Loss 12/07 - GFR 39
                    Current GFR 46 - Stage 3 - Controlled HBP

                    Comment


                    • #11
                      Re: The Girl Born Without a Face

                      Thanks, Toni! It's been a great help to write about the experience. GOOD LUCK!!

                      Originally posted by Tonia View Post
                      Jake, I read your story on the blog. There were some kinda graphic, private but funny moments mentioned. But I love reading the "Real Deal' experiences you had. For pre dialysis patients we have anziety about what to expect. You were able to shed some light on the reality of it. I appreciate your time spent on this and you sharing it with us.

                      Toni
                      http://jakekpt.blogspot.com

                      Comment


                      • #12
                        Re: The Girl Born Without a Face

                        Jake-- I am typing this thru tears that was absolutely a wonderful outlook you have shed on life and the little girl story really got to me .,, Thank you for sharing your thought with all of us.

                        Brandy
                        Adapt and overcome.......

                        Comment


                        • #13
                          Re: The Girl Born Without a Face

                          Originally posted by brandy View Post
                          Jake-- I am typing this thru tears that was absolutely a wonderful outlook you have shed on life and the little girl story really got to me .,, Thank you for sharing your thought with all of us.

                          Brandy
                          Thank you, Brandy. Guess what?? A few hours after you posted this, I was wheeled into surgery for a Kidney-Pancreas transplant. Yep! It happened and it is good!!

                          Check out the blog.
                          http://jakekpt.blogspot.com

                          Comment


                          • #14
                            Re: The Girl Born Without a Face

                            How do you spell Inspiration?? J A K E !!!
                            Your comments about the little girl with no face were sobering and thought-provoking. Keeping things in prespective is so very important for good Mental Health. And of course having tears run down one's face does wonderful things for the Soul.
                            It is so very good to hear how well your transplant journey back to normalcy (?) is working out. I must say I'm very glad I don't have a penis....just doesn't sound like it a bit of fun when the doctors go a-probing.
                            No more insulin, no more Dialysis....what a boring life you're gonna have
                            2000 - Doctors said I would be on Dialysis within 5 years
                            2011 - Still Pre-Dialysis
                            Sept 2011 - GFR: 15 Creatine 3.9
                            Too much of a good thing can be wonderful. - Mae West
                            Doing Good may not do any Good but do GOOD anyway

                            Comment


                            • #15
                              Re: The Girl Born Without a Face

                              Pitty little girl..so sad i've seen her pics.

                              Comment