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Reaching Out Can Pay Off!!!

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  • Reaching Out Can Pay Off!!!

    I just reached my first year on dialysis last week and after months of follow up appointments, the docs have determined that my heart blockages are inoperable and that I am in a race for time to get off dialysis due to the impact of the treatment on my heart. So, the transplant center has been prodding me to find a live donor sooner than later.

    With the help of a really nice lady in my social network, we have been spreading the word online via GoFundMe, Facebook, Instagram, and Twitter. The lady started a letter writing campaign to churches within a 200 mile radius, news outlets, and politicians. I can now say that all the legwork can prove to be beneficial. My GoFundMe campaign is tapped, out, but more importantly, the local newspaper did a story on me and it made the front page in print.

    Thanks to all the online and newspaper attention, 7 potential live donors came forward to my transplant center for testing. Unfortunately, the first 5 were disqualified to be donors due to health issues, but the simple fact that they went through the testing means more to me than the results. The kicker about these folks? None of them are related to me, and 3 of them I have never met in person yet.

    It's important to get out there and tell everyone you meet about your situation. I even had shirts made with a cartoon graphic of me on it asking for a kidney donor. I also had bumper stickers made that I hand out to friends and family to put on their cars.

    Reaching out can pay off!!!
    ************************************************** *****
    Got Pictures? I do!!!

  • #2
    That is inspiration to all who are waiting I am sure. Glad your hard work is paying off. Good Luck with your possible donors.


    • #3
      Nice story.


      • #4
        Ive been on dialysis for 5 years + now. Early in my journey many people were inspired to be tested...very few followed through. I am now at a point where my heart is affected to the point of facing surgery to replace my aortic valve and do bypasses on all my other arteries. After reading your story i realize ive done very little to help my cause. I dont like calling attention to myself and i find myself angry that the people i love most didnt make a move to help many family members who wished me luck but never even considered being tested. Its been disappointing and eye opening. It has a tendancy to make me feel unworthy. Which makes it even more difficult to ask. Your story makes me want to yell DAMN IT PEOPLE...DONT YOU SEE ME OVER HERE? I'M DYING....ARENT I WORTH SAVING? Im sad and angry...and i feel selfish for feeling that way.......