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  • potassium in Milk substitutes

    first off I would like to mention that this forum seems really terrific You all seem to know alot.

    My husband has been put on a low potassium diet. I have no idea what that means. I tried calling kidney doctor to get some ideas but they won't help because my husband is not a patient yet?? go figure.

    his primary care doctor said to put him on a low potassium diet. and in 30 days they are going to rerun the tests.

    I am flying blind on this and learning more every day. He likes coffee but instant coffee doesn't have as much potassium as brewed

    he also likes international delight coffee creamer the amoretta flavored one I can't find anyone or anywhere to find the potassium level in this product

    can anyone help??



  • #2
    I am not sure that coffee and creamer would be the first place to try and cut potassium. I wouldn't think it would be that high anyways. Where you have to cut potassium is in his diet. Check this link

    It is just a guide line there are better sources for information on actuall levels of potassium, but I don't know exactly where right now.
    Hope this helps;


    • #3

      You can "search" food items at the above website.
      You can search by foods in general, or you can go to the Nutrient Search and find lists of foods with phosphorus, potassium, etc. etc.

      In general -- and we cannot prescribe individual patient treatment on this site -- but in general, a "potassium restriction" is less than 2500 mg / day. This really doesn't help you to know, though, because food manufacturers are not required to list the amount of potassium in foods on the nutrition label.

      So - look over the information at our DaVita site that was shared by the last 'poster', and if you are still uncertain of what to do, call the physician who prescribed the "low potassium" diet and ask for a referral to a dietitian in your community.

      Best wishes.
      The response of this moderator is not an attempt to address a specific condition. Please note that the discussion forums do not provide medical advice or professional opinions about specific conditions. The purpose of the discussion forums is to provide an opportunity for individuals to discuss end stage renal disease and related topics. The discussion forms are not a substitute for professional medical care. For questions or


      • #4
        be careful

        Just a quick note --

        I've noticed that some non-dairy creamers like Mocha Mix use soy instead of milk. Soy is high in potassium, so stay away from any of those products as well. My nutritionist recommends rice milk. Not as creamy, but still a good route.

        Also, be careful of salt-substitutes like Mrs. Dash because they replace sodium with postassium chloride and that's bad for us too!

        Good luck!


        • #5
          thank you everyone. we will know more tomorrow I guess I don't mind telling you I am so scared. 4 months ago we were doing find his A1 number was 6 and he was on oral diabetic meds then we have a regular blood work run and the doctor says it jumped up to 7.5 and says we have to go see a diabetic specialist to start him on insulin we go see the diabetic doctor and he says that it isn't the A1 but the creaton (not spelled right) that is 7.5 and says he should be on dialysis we go back to the primary care doctor and have all the tests rerun he says that the potasium is high iron is low and the thyroid is off puts him on a low potassium diet gives him thyroid meds and iron pills and says go to another diabetic doctor. That would be tomorrow in the mean time I tried to get him an appointment kidney doctor we have 6 in our area and they all work out of the same office because I still don't understand this potasium diet because he is on a 2000+ diabetic diet there is no way I can get that many cals. into him without the dairy products. Well apparently the kidney doctor's won't see him until another doctor refers him even though the insurance would pay for it. The primary care doctor sent a home nurse to help me figure it out she knew less than I did. She told me that if potassium wasn't listed on the label than the product didn't have it. Tomatoes was on the list of do not have so I handed her a jar of ragu and asked her to read the label and tell me how much potassium was in it. I don't know what to do next but if you pray please stop now and say a small one I am so scared thanks for letting me sound off here




          • #6
            Annie, I'm sorry to hear about all you're dealing with. As one who's been diagnosed with several chronic diseases, I can tell you that it's common for patients to have to visit a series of physicians before finding one who understands the problem and clearly explains proposed therapies.

            It sure looks like your husband has not been receiving the best of medical care. Maybe that will change now that he has the physicians' attention. I hope so. But, you may find that physicians you've been comfortable with over the years just don't seem so adequate anymore.

            Please don't hesitate to get a second (or third) opinion when you're not sure about what you're told. You can use those consultations as opportunity to interview possible substitute physicians. In my own case, I find about one in four or five physicians is knowledgeable enough, diligent enough, and communicative enough to do good work. Some of the others are downright dangerous. Your mileage may vary.

            You'll find that you must occupy the driver's seat, demanding the kind of care you believe is needed. If you don't, you're likely to get one-size-fits-all solutions that don't really fit well.

            I hope that a low-potassium diet really is what's needed, that it helps your husband's signs and symptoms, that you're able to figure out what it entails, and that he's able to cope with the restrictions that following a diet entails.



            • #7
              Mawf, Mrs. dash does not contain potassium cholride. it is salt and potassium free.


              • #8
                Mrs. Dash

                I'm looking at the bottle and it has 10mg of potassium in it. It's not much, but my nutritionist tells me to stay away from it.

                Hope this helps!


                • #9

                  Mrs. Dash Original Blend

                  Onion, spices (black pepper, parsley, celery seed, basil, bay, marjoram, oregano, savory, thyme, cayenne pepper, coriander, cumin, mustard, rosemary), garlic, carrot, orange peel, tomato, lemon juice powder, citric acid, oil of lemon.

                  Is there any potassium chloride in the ingredients???? !0mg's of potassium per 1/4 tsp, that's 120 per tablsp. I think you'd be hard pressed to reach a high potassium food using Mrs. Dash. This is where dieticians don't really take the time to figure out proper diets. They just make blanket statements about low potassium and don't even take the time to do the research. My personal opinion of most dieticians is they know a whole lot less then I do. They don't have to eat the diet, so why would they really look into it. They should it's their job, but I don't think many do. I am sure there are some very good dieticians out there, but in my twelve years on dialysis i've only met one or two.


                  • #10
                    Mrs. Dash it away then. Didn't mean to cause you anxiety.

                    All I was saying is know what you're eating. Just because something is salt-free or dairy free doesn't mean you can have unlimited amounts. It's just something we all have to learn as we go along on this crazy diet. In my situation, every little amount of potassium counts, so I try to be very careful and avoid it if I can. There are other spice blends out there just as tasty but without potassium. But we all have different philosophies and different ways of staying healthy.

                    So, just saying... don't forget to read the label!


                    • #11
                      Also, be careful of salt-substitutes like Mrs. Dash because they replace sodium with postassium chloride and that's bad for us too!

                      So that is what you posted that I was responding to. You completely gave missinformation on Mrs. Dash. I sought to clear up that error. Yes that stuff called salt free salt substitute, it does use potassium chloride and it dangerous. Mrs Dash on the other hand uses all natural ingredients and I seriously doubt you would have any problem with it. Maybe if you were just eating it, then maybe you could have trouble with it. I don't know maybe you are on real low potassium restriction. I can not truly say about your situation, because I don't know it. I agree that we should check every label. I have given this same advice in other threads. My personal favorite is how some things say Low Sodium. Then you check the label and you are like," what is there concept on regular sodium?". Canned Tuna fish is the worst about this. I have found cans of tuna with as little as 25mg's of sodium per serving. I have also seen cans with as much as 225mg's sodium per serving and they were labeled low sodium. So yes check the labels, but did you ever actually say that in any of your posts? Also about soy milk versus regular milk, they have an almost equal level of potassium. Rice milk is the very best choice for dialysis patients, but in saying that you should always inform people not to get the enriched version of rice milk. Which is the most commonly available type of rice milk. Rice dream has the original version that is not enriched. That is the best choice for dialysis patients. If you are going to buy the enriched kind than you should just as well be drinking yummy organic milk instead, it's real creamy. Does everyone know about sensipar? It has worked miracles with many peoples phophorous levels and their PTH too. Also that on Home Hemo you may actually be asked to take a phosphorous pill instead of a binder. My phosphorous was 3.1 last month, I have been drinking Organic Whole Milk all month, YAY. I don't dare say or believe that I have all the answers for everyone. I do however beleive that if you are going to give information out you should try and give good information out. You never mentioned checking labels and you gave incorrect information about the ingredients of Mrs. Dash. So no anxiety caused here, kinda funny you actually thought you did. As far as me," Mrs. Dash it away then." well I don't have to use Mrs dash cause I use regular sea salt and spices to flavor my food. That is the joy I experience being on HOme Hemo, but I remember being on Incenter Hemo and Mrs dash sure made some chicken taste a bit better before I learned more about cooking my own food.


                      • #12
                        low potassium diet

                        Sorry to hear about your husband's new dietary restrictions. Low potassium diets are very difficult to adhere by. Have you tried dairydelicious ( It is the only milk product I have found that is made for kidney patients. I don't think they make creamers, but maybe adding a tiny amount of almond extract would give a similar flavor.

                        Hope this helps!


                        • #13
                          Originally posted by polarice
                          In response to kidknee5, I would be careful with the DD line of products. My husband incorporated their milk into his diet and became ill. Our doctor says there are very large batch to batch variations in the milk, so the amount of potassium/phosphorus he was "counting" was off substantially. Once he quit using the product he felt much better.
                          Does his doctor have actually proof of this or was it his/her opinion?

                          Reason being I have seen way too many doctors say something just because they did not actually know.

                          Considering that DD is marketed specifically to renal patients I would imagine they would have a disclaimer to this affect if it was occurring.

                          One should remember that PO4 and K are easily absorbed when they are in the form of milk ,no matter if it is DD or regular milk.

                          This is also the same with soda. Even though soda (colas) only has about 18-20 mg of PO4 per serving it is easily absorbed and why most patients are told to avoid colas.


                          • #14
                            Potassium in Milk


                            I'm very sorry for the misinformation. It was the doctor's opinion based on half facts. My husband was not sticking to his diet--and didn't let me or his doctor know! DD products should be more than fine as long as you stick to your diet!


                            • #15
                              potassium in sodium substitutes

                              Hi, I'll list a few things which have potassium in them. Another thing you can do is search the internet for potassium contents of foods. Kidney sites usually have some information on this as well.
                              Salt substitutes are almost all potassium based. They're very bad if you're actually on dialysis. Check with your doctor as you may still be able to use sprinklings of this on the food as it sounds as if he hasn't started dialysis as of now. Tomatoes, oranges, orange juice, turnip greens, all kinds of things you wouldn't imagine. There are lots of things you can still use though so don't despair. You're doing the right thing by asking questions from folks who know and have had the experience. Best of luck!


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