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  1. #1
    Junior Member
    Join Date
    Nov 2012
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    Successes with Work?

    Hi. I am not yet on dialysis, and work part-time and go to school part-time. I have a GFR of 11, and have been on the transplant list for a little over three years. Have had 5 potential live donors, all who were turned down for one reason or another. Oh well. I have PKD.

    My question is, if you work, how do you do it and have any energy for anything else? I worked about 35 hrs last week, in a fairly low stress job in a church nursery with only a few kids. But by Wed my kidneys were very upset, and last night and today I have had a lot of pain and uncomfortableness, some nausea and a bit of edema. This is why I stopped working full time. But, I thought maybe with the lower stress job it would be okay. Not so much. My house is a disaster and I feel like a slug.

    So, if you work, how do you do it? What helps? What doesn't?

    Kim

  2. #2
    Senior Member
    Join Date
    Apr 2012
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    Well, I'm at 11% and have PKD as well, but work 40 hrs/week in a manufacturing supervisory position, as well as having an elderly father I need to visit at least twice a week. I find that eating a LOT of high-carb foods helps (luckily, I'm not diabetic), and trying to get enough sleep helps as well. A couple cups of coffee each day is an absolute must, as well. Perhaps my athletic days in my past are what keeps me going. I've lost a lot of muscle mass (6'2", used to weigh 185, now weigh 165), but what remains is probably still pretty strong.

  3. #3
    Junior Member
    Join Date
    May 2014
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    2
    Maybe both of you can help me understand something. I would have thought at a GFR of 11 that you would be on some type dialysis. I guess my question is what criteria is used to determine when you start dialysis? I have been between 18 to 23 GFR over the past year. Is there a specific GFR taht determines when you start dialysis?

  4. #4
    Senior Member
    Join Date
    Jul 2012
    Posts
    283
    My doctor explained that he wanted me to start at GFR 10 because that is what the dialysis machines will keep me at and I would be ready for a transplant if one came available. It also would help me to feel better between treatments. Every case is different. I have PKD with problems keeping red and white blood cells from detraining . I am triing to get a live kidney which three people were rejected for different reason. So I am waiting on a cadaver kidney. I have been told that each person with each different physical reason for being on dialysis changes case to case.

  5. #5
    Senior Member
    Join Date
    Apr 2012
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    353
    GFR values from blood tests are notoriously inaccurate. A 2h hr. urine output test is the ONLY accurate test, and in my case, it shows my true GFR to be about 5 points higher than my blood test shows. Even so, that puts me just barely above 10 right now....

    FWIW, my nephrologist is more concerned about my potassium levels.

  6. #6
    Senior Member
    Join Date
    Jun 2012
    Posts
    325
    Hello Dean54m,

    GFR, like creatinine and BUN values determined via blood test are highly susceptible to hydration levels and will vary from test to test. Trend in these numbers over time is far more indicative of what is happening to your kidney function. A key study showed that morbidity rates for individuals who started dialysis at GFR's 15 were no better or worse than individuals who started dialysis with GFR's of 6. The patients with GFR's of 6 were able to delay dialysis for that period where their GFR's dropped from 15 to 6.

    There are many factors that will determine the rate of decline - general health, diet, cause of kidney function loss, etc. I began hemodialysis with a GFR of 9 and was physically and mentally in very good health, e.g. no symptoms of ESRD with the exception of my renal function values and anemia. At the rate of kidney function decline I experienced, I probably could have delayed dialysis by 2 to 6 months. The timing to begin HHD training was advantageous as my care partner spouse was off for the summer and available to participate in the HHD training. I was mentally sharp, a necessity for the training regimen. Additionally, a training spot was open in July 2012 and I committed to fill that spot back in May 2012.

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