I'm wondering if anyone else out there has chronic leukemia or lymphoma along with CKD? I discovered that I have CKD stage three about two years ago. Recently, I was also diagnosed with chronic lymphocytic leukemia.
Anyone else have this odd combination? Wondering if there is a connection between the two.
I'm sorry to hear you have so much to deal with. I have stage 4 kidney disease (GFR 28) due to Wegener's Granulomatosis and also Chronic Myelogenous Leukemia. I was dx with both last year and also wonder about there being a connection. Do you know what the cause is of your CKD?
Thanks Judy and Cindy for your replies. Since I am at early stage CKD, my family doctor hasn't referred me to a nephrologist. But I may ask for a referral at my next appointment in July. A friend who is an M.D. has urged me to do so.
I am actually feeling well. Very little in the way of symptoms from my two chronic conditions. Each was discovered accidentally from routine blood tests. So I guess I'm fortunate to have time to learn as much as possible before either progresses to a more critical stage. Just would rather be PROactive rather than REactive.
One concern I have is that when the chronic leukemia progresses to a place where I need chemo, I'm worried that my kidney function (which has been dropping slowly but steadily) will be such that I can't tolerate treatment. So would like to find out what, if anything, I can do to preserve the kidney function that I currently have.
You might want to check out the Leukemia and Lymphoma Society Message Board on CLL. The LLS a great organization and the message boards there are very helpful. They have tons of info available as well as phone seminars. Feel free to give them a call, they are more than willing to help in any way they can. I frequent the CML (Chronic Myelogenous Leukemia) message board and have found it very helpful for info and support. I am on an oral chemo for my CML, I have to take it every day for the rest of my life, and so far it has not affected my kidney function ( I have only been on the med for 4 months, though). I also took Cytoxin for two months when first dx with Wegener's and that improved my kidney function as I started out with a GFR of about 10 (renal failure). However, the Cytoxin is a med. used for Wegener's. I took it to improve my kidney function.
I know it is very scary to be dx with two serious illnesses, I hope you find the info and support you are looking for. If there is anything I can do to help please let me know. Wishing you the best.
I have both CKD and CLL. I was diagnosed with the CLL in 2006. In 2010 my WBC was 30.4 thousand. In Mar. of 2012, it was 39.4 thousand. So, it is creeping up, but slowly and for that I am very grateful.
In Sept. 2010, I was diagnosed with CKD. My GFR was 35. By Dec. it was 47 and in Mar. of 2011 it was 51.4. Then down again in Aug. and Oct of 2011 to 43.99 and 46. As of March 2012, it was 57.
I don't know why the GFR varies so much. Maybe it's diet related (meaning sometimes I'm more careful than other times) and/or maybe stress has a lot to do with it.
I do try to watch what I eat, but I'm not near so fanatical as I was when I got the diagnosis. I've heard that eveyrbody loses kidney function as they age. I'm 70 so maybe I'm not doing so badly.
I eat vegetarian and also have to limit wheat so it can get tricky finding the right combinations of food. I did lose about 10 lbs right after I was diagnosed with the CKD. My husband made a great chart that I can log my foods for each meal and add up the amt. of protein, sodium, potassium and phosphorous. I was very rigorous at logging in at first and now, not so much. It's hard to be continually hyper-vigilant.
I think I have less energy than a lot of people and I usually nap during the day at least once. But, I still help take care of grandchildren, ride my bike and go to Curves to exercise.
It somehow cheered me up to hear that you have the same unusual combination of chronic diseases. I am not alone! And I'm happy to hear you are doing well. I may have spoken too soon as I have (just since Memorial Day) had a bad cold, followed by shingles, and now surgery for skin cancer. So even though my WBC is not very high, it appears my immune system is not doing its job. We are close in age and stage so maybe we can stay in touch - and compare notes.