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  1. #1
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    Question Hand Pain/Fistula arm

    Not sure if this is where I should post this, but has anyone had pain in the hand your fistula is in? I have 2 fistulas, one in the wrist, didn't take, 2nd in bicep...above the elbow...I realize the hand will get cold etc. but this week the left ring finger has completely gone numb, and throughout the day there is a severe pain in the tips of my fingers, like you smashed it and the blood is flowing into it... my neph said we'd watch it... and that if it got worse back to the vascular surgeon... anyone had a similar experience?

  2. #2
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    Re: Hand Pain/Fistula arm

    I have had pain in my hand a few times..I went to a access center and they put a camara in my fistula and hand and found a blockage. They used a ballon to fix it. It was good for about a year and I had to go back a few months ago. I would see if they can scope your arm to see if there is blockage. Sometimes when I wake up my hand is numb but they haven't found anything that causes that. Have you ever been to a access center?

  3. #3
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    Re: Hand Pain/Fistula arm

    I have pain in my arm near shoulder. First I could not get in to see vascular surgeon. Nephrologist referred me and it was found I have a thin area in my vein. Will repair in a week.

  4. #4
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    Re: Hand Pain/Fistula arm

    We need to remember that the fistula is made by connecting a vein to an artery. Any type of pain and/or numbness on fistula arm should be checked by vascular surgeon A.S.A.P.

    Unless the fistula is fairly new (within 6 months or less) slight pain, coldness and maybe even numbness MIGHT be acceptable.

    However the numbness is/can be a sign of bad circulation or low blood flow to the arm.
    It can be dangerous because as we know an artery is a vein that goes to the heart. Any type of blockages or slow blood flow to the heart is not a good thing at all.

    It might turn out to be nothing, but why take a chance.

    Please keep us posted as to what was causing the pain.

    Take care

    Marina
    I received the GIFT OF LIFE on Nov 9, 2010 thanks to my wonderful donor Laura and her family!

  5. #5
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    Re: Hand Pain/Fistula arm

    I have never posted before, I have just been reading post's the last few month's. I had my Fistula placed last Sept. after my Kidney function kept going down. I was OK until Nov 21 when I began ill and I was in the hospital until Jan 25. I was in ICU for 2 weeks of that time and had home health care until the end of March. It has been a real rollercoaster ride since I started Dialysis on Dec 25th.

    My 1sy Fistua was not done properly by the VA and I was getting stuck 4-5 time's and the people at the Dialysis Center set me up for a Fistulagram and the Fistula was fine, so the sent me to a Vascular Surgeon. He was great and said my Fistula was just to deep and He did a Revision, so I had a Chest cath for a couple of months and just got that out a few weeks ago.

    I consider myself fortunate, I started Dialysis on Dec 25 and I am quite happy with the Davita Center I use, they have been good to me.

    Anyway what caught my attention was the talk about the pain inthe hand/arm. When I sit the the chair during my Dialysis treatment the part of my arm that rest on the chair really hurts , real bad. My Fistula matured real nice, and I never want to have another Fistulagram again. I did not mind the UltraSound. Anyway, I have rambled on, but I just wondered is anyone in having a pain while the are getting treatment's. The pain is pretty intense and it is just during treatments and not all the time.

    Bill

  6. #6
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    Re: Hand Pain/Fistula arm

    Hi everyone,

    I'm new here...I'm not a patient but i'm a davita nurse (LPN). I'm the VAM and adequacy manager of my clinic. I'm here to say that i've been reading the forums for the past months and have been really moved. I want to make my work a better place and by reading everyone's concerns here, i've found a new way to make things more comfortable, easy and enjoyable for my unit. I have come to realize the "higher ups," although their intentions are very good, don't quite understand how it is to work for this company as a staff member. I've been with DaVita for 5yrs now. My grandfather also dialized at my unit before I became a nurse here. My mom's a nurse and has been for almost 4 decades now. I've learned how to be a better nurse from her and still learn how to be a better nurse from her. I'm currently in school for my RN and will hopefully have my own clinic to instill the compassion that sometimes really lacks...i'm sure everyone here has experienced that.

    Ok now that i've really bombarded everyone with my life story...sorry...let me get to some insight and possible suggestions.

    This is really general and i'm going to try to cover "pain in fistula in hand/arm" in general.

    More than likely, from my experience, the most logical to me, the pain could be caused by stenosis (narrowing of the vessel). The narrowing could be literally anywhere on the side of the AVF. I've had my patients tell me their shoulder hurts, nowhere near the access, and i've sent to them for a fistulagram and there's been a blockage or stenosis in the vessels closer to the shoulder and chest. Believe it or not this can cause pain not only in your shoulder on access side but in or around the access as well. The easiest way to detect stenosis can actually be done by you. Ask your unit for a cheap stethoscope so you can listen to your access at home and before you go to treatment. If there's stenosis in your access, you will hear a high pitched sound. Normal sound will be like a washing machine. You can listen to it here for both fistula and graft. just scroll to the bottom for the audio clip links.

    http://www.fistulafirst.org/Healthca...eConcept9.aspx

    another reason could be, "steal syndrome" or "blood robbing" which is where blood is being "stolen" from the rest of the arm because of "collaterals" that are forming. Collaterals are extra vessels forming from the access which in turn steals blood from the access which in turn, blood does not distribute throughout the arm like it should. Think of your fistula as a main road/highway, all the little side streets, turn off and exits would be the collaterals that were formed from that major highway/road

    Please don't think i'm here to defend DaVita for whatever mistakes we as a company have made. I made a promise as a nurse, as ALL nurses do in nursing school, to be a patient advocate. I'm here to help and answer questions as best to my ability and to be a patient advocate for you all and also to learn from everyone here. DaVita prides itself on "service excellence" and I want to make sure that I myself give the best service I can and to pass along things i've learned to make my unit a better place not only for staff but most importantly for patients.

    Please please please wash your access, listen and feel your access before treatment Washing will prevent infection and listening and feeling will help your VAM and you better your access care

    God bless! Please let me know of any questions sorry for such a long reply

  7. #7
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    Jan 2012
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    Smile Re: Hand Pain/Fistula arm

    I am glad the nurse responded with the website for more info. I am experiencing pain near my shoulder and not near the fistula. Did have the fistula ballooned. Know things will get better.

    THANKS SO MUCH FOR THE WEBSITE INFO!!!!

    JMI

  8. #8
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    Mar 2012
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    Re: Hand Pain/Fistula arm

    THANKS for the reply, that was a lot of good information. I was having a tremendous amount of pain down my arm and in my hand while having Diallysis and was just suffering through it. Then I did what we all should do, I told my nurse at the unit about it. She told me to hold my arm closer to my side and it made a world of difference Such a simple thing, but I thought I had to keep my arm streched out on the table. The one thing I have learned in this whole world of Dialysis is to ask a lot of questions and if it does not feel right, ask more. I have gained a lot of information from reading hear, don't post as much I should. Thanks again for the information.

    Bill

  9. #9
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    Jul 2012
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    Hi, I had the Graft Fistula put in on Aug 16,2012 and on August 17th i was rushed into the hospital with what they call a steal hand syndrome. They went in on August 18th and disconnected it. The Drs said if i did not have that done i would of lost my arm from elbow down. I was told my veins are very small and week so i cannot go with a fistula. Right now am on a catherter port in my chest. I have only been on dialysis since May 2012. Since i cannot go with a Fistula they gave me 2 choices Go with what they call a Hero or go to Home dialysis. I do not feel i am ready to do at home but not sure of the hero either. Am looking for some information or hear from someone that is doing these. Thank You Delores

  10. #10
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    Apr 2012
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    9
    Quote Originally Posted by Delores1935 View Post
    Hi, I had the Graft Fistula put in on Aug 16,2012 and on August 17th i was rushed into the hospital with what they call a steal hand syndrome. They went in on August 18th and disconnected it. The Drs said if i did not have that done i would of lost my arm from elbow down. I was told my veins are very small and week so i cannot go with a fistula. Right now am on a catherter port in my chest. I have only been on dialysis since May 2012. Since i cannot go with a Fistula they gave me 2 choices Go with what they call a Hero or go to Home dialysis. I do not feel i am ready to do at home but not sure of the hero either. Am looking for some information or hear from someone that is doing these. Thank You Delores
    Hey there Delores sorry to hear about having so much trouble with your AVF (Arterial Venous Fistula), with my experience a vascular specialist could've possibly helped more than a surgeon only because surgeons are quick to cut in order to fix the problem vs. trying to really figure out what can be done to save the AVF and your arm. Steal syndrome normally means there is are "collateral" vessels that have formed and stealing the blood from your AVF causing pain and immaturity in your fistula. I've had plenty of patients have weak vasculature in general and their fistulas were able to be saved; BUT everyone is different so your case may be different. HHD (Home HemoDialysis) normally requires a working AVF so PD might be your best bet. I will say I personally would much rather have Peritoneal Dialysis vs. Hemo at home. Easier on you and your support system by far.

    HeRo grafts are a LAST RESORT only from my understanding. Here are some info on what they are and how they work:

    http://www.veithsymposium.org/pdf/vei/2090.pdf

    I was trying to look for something on the fistulafirst.org site but unfortunately wasn't able to find any. That pdf was the most thorough description I could find.

    I hope this helps!

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