Subscribe to this Thread…
Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: Support Groups

  1. #1
    Senior Member
    Join Date
    May 2010
    Posts
    202

    Support Groups

    So many people have asked about support groups. I have a few questions for you. Your responses will help me and others who are starting local support groups.

    1) would you be willing to sign up for field trips? such as to a hospital transplant center, grocery store, dietitian office, vascular center, dialysis clinic

    2) would you be interested in non-related outings (just to get to know each other) such as bowling, mini-golf, movies, plays, or ball games

    3) would you be willing to help with fund-raisers so that the group can have things like parties?

    4) what do you want from the meetings?

    5) what type of guest speakers would you want to hear from?

    Any other info will be taken into consideration as we plan. We want to help each other!

    in center hemo dialysis since May 2009
    Sudden ESRD - non diabetic (but have 2 at home)
    turned down for list "lack of support" WHAT!!! starting over at different transplant center)

  2. #2
    Junior Member
    Join Date
    Mar 2011
    Posts
    10

    Re: Support Groups

    I am new to this support group. I do dialysys at home (HEMO) and am looking for other people that are doing the same thing.

  3. #3
    Senior Member
    Join Date
    Feb 2006
    Posts
    1,511

    Re: Support Groups

    Hi OkieCowgirl79,

    We started a support group at my unit. It was pretty clear to me that not many folks were interested on a face to face group. Others didn't feel like coming back to the center for meetings. Maybe they associated it with "Doctors and medical procedures" We had the meetings monthly on a Wed evening, some patients had had hemo that day and were too tired to come back for a meeting.

    These outings and/or fieldtrips you mentioned would have to be done on a Sunday to accomodate hemo patients, since it's the only day the center is closed.

    As far as guest speakers are concerned, a dietitian would be great to have since many of us had hard time adjusting to the diet in the beginning.
    A transplant Dr/RN would be great too for those interested and with questions regarding how to get on the list and how the transplant will work, as well as TX meds side effects.
    A financial/insurance specialist would be great since we know that some dialysis patients at some point might need to take some time off and need to be aware of what's available out there. we recently had such a meeting in a group I attend, I was surprised at the available resources we have, although they're not cheap for somebody on dialysis or TX.

    Have a great day!

    Marina
    I received the GIFT OF LIFE on Nov 9, 2010 thanks to my wonderful donor Laura and her family!

  4. #4
    Junior Member
    Join Date
    Aug 2010
    Posts
    3

    Re: Support Groups

    My names turon and ive been on dialysis since 9. im 30 now . ive done all forms of dialysis 1 kidney awaiting second....ive decided to form a ladies outreach support group. ive gotten a very warm response. We'll be going on outings picnics shopping etc. ive had the idea for well over 2 yrs due to my grandmothers death i shelved it. But theres hope for the women in this area alex virginia. it;s open to all dialysis patients women all over the us. Interested email me @ turon30@hotmail.com. Ive hope that it can show more tha n just dialysis that we have normal fun lives!!!
    The 1st meeting is on this saturday at 4pm for the dmv area patients. im going to put my all into making this a success...WITH OPTIMISM WE CAN WITH CONFIDENCE WE WILL-TURON HAYES

  5. #5
    Senior Member
    Join Date
    Aug 2006
    Posts
    1,008

    Re: Support Groups

    It is never a good idea to post your email address publicly on ANY forum but use the forum given Private Message system to keep you and your email address safe. Posting your email address publicly on any forum is like putting your phone number out on billboards. Just saying..
    Angie
    Kidney Korner Dialysis Ethics Forum Kidney Pix Awareness Shirts KidneySpace Donor Search
    I will be walking a Kidney Walk in Ontario Canada Sept 18th 2011

    • Peritoneal Dialysis = 4 yrs
    • Hemo Dialysis (in center) = 2 yrs
    • 2 kidney transplants = 1990 - 2001 & 2007 to present

  6. #6
    Junior Member
    Join Date
    Oct 2011
    Posts
    6

    Re: Support Groups

    I went to a class given by the local davita and askd them about local support groups and was told that it was against the law can you please tell me if this is true and if so why

    thankyou, bmd49

  7. #7
    Senior Member
    Join Date
    Feb 2006
    Posts
    1,511

    Smile Re: Support Groups

    Quote Originally Posted by bmd49 View Post
    I went to a class given by the local davita and askd them about local support groups and was told that it was against the law can you please tell me if this is true and if so why

    thankyou, bmd49
    It might be against the "DaVita law".
    Unless they're illegal/against the law in your state. I know for a fact they're not against the law in California.

    We started a support group a few yrs back at my unit sponsored by the hospital. The hospital/medical center let us use a meeting room and my dialysis nurses attended the meetings.
    I also attend another group (when time allows) it's by a non-profit organization and sponsored by a medical health center, which allows them (us) to use one of their meeting rooms.

    There's also TRIO (Transplant Recipient International Organization) it's a nation wide organization with chapters in each state. The one in my area meets 1x/month at a local Hospital.

    But, like I said, it might be illegal to have support groups in your area.

    Take care!

    Marina
    I received the GIFT OF LIFE on Nov 9, 2010 thanks to my wonderful donor Laura and her family!

  8. #8
    Senior Member
    Join Date
    Oct 2006
    Posts
    525

    Re: Support Groups

    I believe that as an American you have the RIGHT of assembly and once assembled you have the RIGHT of free speech. I believe that's all there is to that subject.
    Cicero
    May God have mercy on us all

    CK

    Idiopathic globular membranous nephritis 1999-2006
    Feb 2006 Dx about 1-2 yrs before dialysis. Dialysis start 6-2006
    Chest Cath 4 mos in center hemo dialysis
    Fistula, button holes, self stick days 07-09 in center hemo
    Graft nocturnal hemo 4Q09 to present

  9. #9
    Junior Member
    Join Date
    May 2014
    Posts
    7
    I would love to be involve in a support group with people like me that can help and give suggestions on how to accept and deal with esrd. It has taken my seven years to accept my condition. I was trying to ignore it and act as if it wasn't happening and over the years I have to say I have become mire and more depressed. I turned to alcohol and drugs. Now thise things don't work anymore in fact they make me feel worse. I
    think if I got involved in a support group with people who can relate to my situation it would be

  10. #10
    Junior Member
    Join Date
    May 2014
    Posts
    7
    I have been searching online all night I'm trying to find a website where I can disscuse and get help with being on dialysis and advice on how to deal with depression and all the other isues I'm having with my health so can somone please point me in the right direction please.

Page 1 of 2 12 LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •