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  1. #1
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    Who dies sooner~~dialysis or RAS person?

    Sorry to be so blunt. Really have no other place to ask this question. Im the one who posted that she had fibromuscular dysplasia. Nope. Nothing so fancy and rare for this bad luck Irish girl. I was diagnosed with Renal Artery Stenosis. So, instead of having abnormal tissue growing inside of my left renal artery I have plaque growing inside of it. Apparently enough of it to cause symptoms. Thats the bad part. It doesnt cause symptoms until it gets so thick inside your artery that the blood is being forced more. Then your body tries to fix it by making your blood pressure shoot up. Which is what mine did. Which is what mine continues to do despite the Valturna that I have been taking for over 2 weeks, the Bystolic for over 5 weeks, and the baby aspirin for about 6 weeks. They will probably do a stent thing to open it up but who knows how long I have. I mean from what I have read if you have symptoms then you are already suffering some kidney damage. If your bp doesnt go down, even with all the drugs Im taking for it then your looking at a heart attack, stroke, or an aneurysm. Who knows when. Really can happen at any time. My grandpa had his first heart attack at age 32 and then he had other ones and finally died of one at age 63. My dad, his son, on the other hand never suffered even a headache in his whole life until he was taking a shower one day at the age of 49 and killed over dead with a massive heart attack---almost completely blocked in all 3 arteries. Well I am 44 right now.

    So, I felt better when I did research for several weeks and found out that even if I had to go on dialysis I could still live a long and complete life. The daily and overnight dialysis really perked me up. My husband at the time was treating me like a queen. Being so loving, holding me in his arms at night for the first time since before I got pregnant with my 13 yo son. His mom who had not talked to me for well over a year was suddenly my friend again. Well, I tell him I have this RAS going on. He asks me if it means no dialysis. i tell him probably not. I hope not. Well, he has turned into his usual cruel self again. I have been going through a grief cycle due to all this hitting me at once (yeah like having stage 2 hypertension for over 8 weeks and never leaving my room and just everything...its all been horrible) and so I have been staying up a lot at night because I dont like being around a lot of people during the day. The sun and the birds bother me too. Well, he just yells at me tonight before he went to bed, "dont stay up late tonight so you can take your son to school tomorrow". I have been up with those boys every single morning since they were pre-k kids. That so hurt.

    So heres the question, who dies sooner---dialysis person or renal artery stenosis person? Because obviously my husband thought I was a goner when he thought I was going to have to have dialysis and now that I just have plain ole artereosclerosis and hypertension he doesnt care anymore. I see why people dont have kids. If I didnt have kids I would be long gone a long time ago.

  2. #2
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    Re: Who dies sooner~~dialysis or RAS person?

    well im very sorry to hear that but I do know people on dialysis can live very long lives I dont know about your particular disease but im sure there are people on here that do and will help you this is a great website with amazing people who will be here to help you in anyway that they can just dont ever give up!! take care!!!!

  3. #3
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    Re: Who dies sooner~~dialysis or RAS person?

    irishrooster, The stent procedure is a very common one. There must not be too much of a blockage or I assume they would do a bypass of the artery. My mother has had a 5 way bypass plus bypass done in both her legs. That was 15 yrs. ago and shes in great shape! I look at it this way. Now you will be closely monitored and receive good care. This problem of yours is not a death sentence. You are fortunate they caught it early so they can fix it. Your Dr.s will get your bp down. Sometimes it takes awhile, thats all. I think your biggest challenge is not over react with health issues by looking at the worst case scenario. Research this and in time I'm sure you will feel more at peace with it.

    I'm sure your family goes through all your frustrations and fears right along side of you. When you suffer, they suffer. This is really hard on kids and your husband. Plus, thats not the kind of attention you need. If you can't find a way to work through this, therapy might be a good idea. I really do wish you the best. Let us know when the procedure or surgery is, ok?
    May you always have Love to share, Health to spare, and Friends that care


    Acute Kidney Function Loss 12/07 - GFR 39
    Current GFR 46 - Stage 3 - Controlled HBP

  4. #4
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    Re: Who dies sooner~~dialysis or RAS person?

    Thanks JenJen, I appreciate your response. Yes, I have come here a few times already when I was told that my GFR fell like 20 points in about a 4 month time period. I guess that is why. This blockage, I mean. Yes, I just need to get in school. My mom even told me last night that I just need to be in school Nothing distracts me and keeps my head on straight like going to school and learning something new. Plus it will be a good career for this type of stuff. I plan to be a medical assistant. It seems they are pretty popular at the specialist offices. Of course they always have an RN but Medical Assistants are getting popular. They are trained in clinical and clerical. So they are like a twofer!!! I am really trying to find a cosigner right now. Thats the hard part. People always think that they are signing their life away to cosign!! I know my dad does!!! Anyway, thank you for the encouraging words. I am hoping today is a better day. Take care!

  5. #5
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    Re: Who dies sooner~~dialysis or RAS person?

    Tonia, thanks for the straight shooting. I really need that right now. You see, you know how to do it the right way. My husband just doesnt say the right words. I become overly emotional because I think he doesnt really care for me and I jump to so many conclusions. I know my husband cares. He does so much of the housework simply because I hate housework. I mean I really do, with a passion. I tell him all the time "Im an academic, academics dont "do" housework." And really I could live in clutter and dust all my life, I could live out of boxes and never think twice of it. I have been to many college/university professors homes and that is exactly how they live. They have too many books, just as I do. What do you do? Anyway, he takes care of our family and I should be nicer and I will try.

    I am just scared about this. My grandpa probably died of this stuff, then my dad did. Now I feel like it is my turn. I really have had nothing but bad luck all myu life. Yeah, I married a halfway decent guy (he has a horrible Irish temper and calls me names he shouldnt right in front of our kids, plus he has been treating me bad lately in front of the kids and they know what is going on with me--I think that bothers them). But I swear to you Tonia, if you had to walk in my shoes for the next 11 years as I have done for the past 11 years you would totally understand me. I used to not be the way I am. I used to be fun, and my house was the hangout place. Everyone I know asks "whatever happened to Tamye? Why is she like this now?" Controlling husband who likes to keep his wife "in line" as he and his buds call it. So yeah, I guess being sick and getting special attention for it is nice in some sicko kind of way because I dont ever get any attention any other way. I have tried every thing to get special "husband" attention from him and nothing works. Im just tired. So very tired. Well I guess I will keep working on the "college solution". BTW~~ do you know any good sites for this RAS or just the stuff like your mom has had that might give me a clear idea on lifestyle changes? I know I need to exercise, and eat better. They always say that. But there are lots of different ways to exercise and lots of different diets. So I would love to know if there is a big web site that has all the bells and whistles to help people like me and your mom? Thank you!!!

  6. #6
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    Re: Who dies sooner~~dialysis or RAS person?

    I don't blame you at all for being scared. This is a new diagnosis and anyone would be nervous. Your absolutely right about diet and exercise. This is the best thing you can do for yourself. You will feel better physically and mentally. I don't know of other forums that deal with problems with the arteries, but I'm sure there are some out there. Hang in there kiddo. Tamye, is that your name? Very pretty name.
    May you always have Love to share, Health to spare, and Friends that care


    Acute Kidney Function Loss 12/07 - GFR 39
    Current GFR 46 - Stage 3 - Controlled HBP

  7. #7
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    Talking Re: Who dies sooner~~dialysis or RAS person?

    Hi Tonia! Yes Tamye is my real name and I like Tonia as well. It is easy to remember you because I always say to myself "Tamye and Tonia~~Tonia and Tamye" makes it easy to remember. I was a waitress for a year and have over 170 college hours so believe me you have to come up with good memory skills!! I am feeling better right now. yes it is very late and I am about to hit the hay. I am shutting down in just a minute. I am meeting with the Interventionalist Radiologist tomorrow for a consultation. Its so weird, I feel like a little girl all of a sudden. I feel like I need my mama there with me so she can be the mature one to ask all the questions. Then I could just sit there and hide my face behind her back!!!She really wants to be with me also but she lives 3 hours away. She is so mad at my husband and my dad right now that she wants me and her to run away together to Rockport (a bay town in Texas--called the Texas Riviera because we have a lot of movies stars hiding out there---its a quaint town, you can still smoke in stores and restaurants, pretty neat huh!!!) Anyway, Im going through grief phases really fast. Today has been denial all day long. i have been laughing and singing and even dancing. Cleaning somewhat, even bought groceries, came home, put them all away and took my bp and it was only 130/82!! Isnt that wonderful! Well better run, my leg is going up and down -- a sure sign of nervousness that I am afraid my husband is going to wake up and yell at me to come to bed. Love ya girl!!!

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