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  1. #1
    Junior Member
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    Aug 2009
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    My Husband's research on some scam herbal remedies, preying on kidney disease patient

    Dear Fellow Kidney Disease Patients,

    Below you will find a link to an article written by my husband warning of some herbal remedies that supposedly cure polycystic kidney disease and other diseases. A friend of ours recommended Kidnofax to us as a cure for my polycystic kidney disease. My husband decided to look into it further and he posted his findings online at the link below. Related products are called Reneton and Polcical.

    My husband and I are not against herbal remedies, so please don't think that we bash all herbals. Matt wanted to look into this to see if in fact it could help me. The moral of the story is to be wary and intelligent when shopping for anything online.

    Sincerely,
    Raziah (Lori)


    http://www.knowlesville.com/matt/2009/11/kidnofax/

  2. #2
    Senior Member
    Join Date
    Aug 2006
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    1,008

    Post Re: My Husband's research on some scam herbal remedies, preying on kidney disease pat

    Thank you for sharing this. I too have a friend who suggested that I stop dialysis and just take herbal supplements. This frustrated me because that statement alone made me realize he didn't have all his facts to be able to make such a rash suggestion to me. I am glad I didn't listen to him.

    Now mind you, some things are okay to talk but there is a LOT of misinformation on the net! I was always told to talk to my dietitian about anything including herbal additives that are so popular to put in drinks and teas now.

    A friend of mine who was only stage 3 but had reflex corrected and told might never progress now, does have a medical herbal specialist and adviced me that only the licensed ones should be listened to. But there are a lot of unlicensed herbalist out there because it is so easy to make money especially on the fear of the growing number of kidney patients.

    Ah yes, I just searched my email achives and found it. Turns out someone else had asked on this same forum but instead of searching I will just quote here here:

    Hi, dear Angie --
    No, I don't have a DaVita account, but I read posts there sometimes. I just looked at this one. I personally don't know anything much to tell anyone about natural remedies/meds for CKD or other ailments, because I'm not trained in it, but I follow the very safe protocols my ND gives me. I trust him, because he's medically trained, but also I read up on what he gives me and ask him the specifics and such. While I can't tell anyone about specific or general herbs and other natural remedies, I can suggest that a person could look for safe natural healthcare by seeing a Doctor of Naturopathic Medicine (ND) (rather than a layperson herbalist who's not medically trained). A person can learn about naturopathic medicine and/or find listings for such doctors at sites like The American Association of Naturopathic Physicians at http://www.naturopathic.org/, the Association of Accredited Naturopathic Medical Colleges at http://www.aanmc.org/, and at particular naturopathic medical universities, like the Southwest College Naturopathic Medicine at http://www.scnm.edu/.
    Feel free to post this (without my name, please - thanks) on that thread at DaVita, if you like.
    --Name Withheld by Request--
    Also here are 2 other good articles on why kidney patients should NOT use herbal remedies:

    Herbal Supplements for the Kidney Patient: Caveat Emptor
    EasyLink Access #: 104
    By Beverly A. Cohen, MHS, RD, LD
    http://www.kidneytimes.com/article.p...20070207130605

    and

    Health Canada is advising consumers not to use products containing Aristolochic Acid
    Angie
    Kidney Korner Dialysis Ethics Forum Kidney Pix Awareness Shirts KidneySpace Donor Search
    I will be walking a Kidney Walk in Ontario Canada Sept 18th 2011

    • Peritoneal Dialysis = 4 yrs
    • Hemo Dialysis (in center) = 2 yrs
    • 2 kidney transplants = 1990 - 2001 & 2007 to present

  3. #3
    Senior Member
    Join Date
    Jun 2009
    Posts
    484

    Smile Re: My Husband's research on some scam herbal remedies, preying on kidney disease pat

    Quote Originally Posted by angieskidney View Post
    Thank you for sharing this. I too have a friend who suggested that I stop dialysis and just take herbal supplements. This frustrated me because that statement alone made me realize he didn't have all his facts to be able to make such a rash suggestion to me. I am glad I didn't listen to him.

    Now mind you, some things are okay to talk but there is a LOT of misinformation on the net! I was always told to talk to my dietitian about anything including herbal additives that are so popular to put in drinks and teas now.

    A friend of mine who was only stage 3 but had reflex corrected and told might never progress now, does have a medical herbal specialist and adviced me that only the licensed ones should be listened to. But there are a lot of unlicensed herbalist out there because it is so easy to make money especially on the fear of the growing number of kidney patients.

    Ah yes, I just searched my email achives and found it. Turns out someone else had asked on this same forum but instead of searching I will just quote here here:

    Also here are 2 other good articles on why kidney patients should NOT use herbal remedies:

    Herbal Supplements for the Kidney Patient: Caveat Emptor
    EasyLink Access #: 104
    By Beverly A. Cohen, MHS, RD, LD
    http://www.kidneytimes.com/article.p...20070207130605

    and

    Health Canada is advising consumers not to use products containing Aristolochic Acid
    Hi Angie,
    Thanks for sharing your recent post regarding herbal remedies, I was told early on not to take herbal meds of any kind, but this was way back in 1990, I don't know about now, there are so many new and interesting facts discovered every day where the dialysis world is concerned. The links and post were quite interesting, and it is so great that you are sharing this with dialysis pts, that may not be aware of these facts.

    Glo

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