I believe my kidneys were damaged by years of lithium, ibuprofen (chronic pain), and long term antibiotic use (misdiagnosis). Now I'm faced with high uric acid levels and can-not-stay-awake fatigue after a long day at work or hiking.
I'm looking at diet changes but it seems to be in conflict with my diabetic needs. For example, I'm limited to 20 g carbs and need 500 calories per meal. I eat almost no grains, start with vegs till I hit my carb limit then add meat to fill in the remaining calories. adding beans works for a few days then my BG level starts to climb.
I try to treat my self by the numbers especially when using alternative treatments such as benfotiamine (proteinuria), baking soda (eGFR, BG) and Cannabidiol (systemic inflammation, chronic pain, depression, and BG)
I fear checkups with my kidney doc because I do not want to hear if my eGFR is dropping. I see CKD as a slow death sentence. if the past is any prediction, dialysis and transplants will not be options because of severe side effects from medications. I fear more than death, a life alone as I lose mind and physical ability to work. I do not want to end up like my step father, 400 pounds, grossly obese from heart meds and passing each day without enough brain power to do anything but watch TV.
I'm not sure if I'm looking for anything except to tell my story and maybe find something that my dr's may have missed. I also want to stay healthy for as long as I can. I ended a f***ing miserable marriage after my stent wakeup call and now I have a really nice GF I haven't talked much with her about my CKD am not sure how she will react if my CKD get bad enough that we can not travel (shared travel is *major* part of a relationship).
so that is my story. thoughts?