Close Mobile Navigation

Announcement

Announcement Module
Collapse
No announcement yet.

Just diagnosed... Stage 3 Kidney Disease.

Page Title Module
Collapse
X
Conversation Detail Module
Collapse
  • Filter
  • Time
  • Show
Clear All
new posts

  • Just diagnosed... Stage 3 Kidney Disease.

    I too just learned I have Stage 3 KD. In the prelim stage, being that I went to the doctors for a precheck prior to my annual physical, learned my BP was high (was fine 15 months ago, though I had been on BP meds years ago). So had a blood test done, and found out I also needed meds for cholesterol and then the "oh, and we are concerned about your kidney health, you are Stage 3 Kidney disease. We'll discuss this with you when you come in for your physical..." What??? What does this mean. I met with doctor, and he never once mentioned diet, changes, etc... Just that he would refer me to a specialist. Still a week, nothing yet. So I'm online, doing as much research as I can.
    The last several months I'd been feeling not so great. Actually was concerned with the tinges of pain in my lower back area, as well as fatigue, swollen ankles, etc... I think part of me is relieved to know what was going on, while the other part of me is mad that I didn't action this sooner, or keep up with my blood pressure better. Maybe it's the attitude that I'm still functioning upright, so a few pains here and there at 57 is normal.
    So I've changed my diet based on online, cutting out most of my protein intake (I was on a non-carb diet prior...). Cheese, meats, dairy are off the plate. Lots of fruit and veggies. Pasta and non grainy breads. Processed food out (no cold cuts, etc...). Gone is the butter and salt. I did a bagel with olive oil and garlic powder this morning, and actually enjoyed it.
    Looking forward to reading more posts, getting advise, etc...
    Regards, Carl

  • #2
    Welcome to the forum Carl. I would be care about following a diet at this point, I'd wait to get my diet from the Dr. He/She will give you your intake diet based on YOUR labs. You said you have High BP so just cut down on salt, you cut too much you get cramps. Don't go nuts eating high cholesterol foods, animal fats, eggs, etc. But don't take all cholesterol out of your diet unless you are told to do so. Your brain needs some cholesterol. We don't all have the same diet, like I said, it's based on our labs. I realize you want to help yourself and make changes but be carefully. What you can do at this time is get a good source of information to help you through this crazy diet you will have. There is a site called eatthismuch that may be helpful. There are some apps you can get that may be of help. You can also hunt down some books on nutrition, make sure they list cholesterol, protein, sodium, phosphorus and potassium, etc. That will keep you busy trying to get these resources that you will be needing when you get your diet designed just for you. Research, research research, knowledge is power. Calm down and take control, at this point you can still make a difference. Ask your Dr what part you play in this, ask what YOU can do at this point.

    Comment


    • #3
      My story is somewhat like yours, just found out Friday but not from the doctor... from the patient portal on the internet from his office. I researched and obsessed all weekend. The doctors office called me yesterday and confirmed the diagnosis and told me to diet, stay off all ibuprophenm, tylenol, NSAID, vitamins, drink only water and come back next Tuesday to see if the creatinine levels were a fluke or actual. This is the first time for me to see him. My previous pcp records indicated stage 3a but he never counsled me or referred me to another doctor so I forgot it. There is a definite freak factor to seeing it go from 3a to 3b since September. Maybe he will call tomorrow!

      Comment


      • #4
        Hello Carl. I am 3rd stage level A. I was level B, but, due to modifying my eating habits, the kidneys are doing good. I do not eat red meat, no beans of any sort, no processed foods which include all boxed and bagged foods like Rice A Roni, popcorn, etc.. and have cut my sugar about 95% < I am also diabetic>. I have made a drastic change to what I put into my body and it has paid off. My glucose readings are so good, I was told by my doctor to cut my diabetic meds to half, my blood pressure is excellent, and my kidneys are doing good <better then they were 6 months ago, the GFR and creatinine levels are good. I am maintaining , losing weight and feel good. I drink lots of water, a have one cup of tea a day, that is the only hot drink I do. I do not eat any fowl, and one time a month I eat fish, being Alaskan of course. No bread at all, and oh gosh, my list is hundreds of foods that I no longer eat. I allow myself 2000 mg of salt a day which is one teaspoon and that includes any sodium in food. I may be over doing it, but for me, it works. I eat lots of fruit which is does not bother the kidneys but still be careful for the potassium in them and cabbage which is the kidney's BFF and no avocadoes, nor artichokes, which I dearly love. No oil except olive and spare on that. Lots of salads, etc. I watch the amounts of protein, potassium, phosorous, calcium, sodium, sugar, in what I eat. Do the research and then work on creating an eating plan just for you. I do not eat any bran, but can have and love to eat Cream of Wheat and watch the Oatmeal. I have two dieticians who have told me I need to eat red meat, I have refused. I just got my blood test back and the doctor even called me with good news. I am not anemic and everything else was good. I am still in 3rd stage, and will be in it, but I can help my kidneys by not eating those foods that can have a negative impact on them. For me, it works, you need to work on your own plan. It has taken me a long time to develop my "diet" and even then, I am constantly working on it, changing it, researching it for I not only do I have diabetes but a pacemaker as well, so, an eating plan is good for me. Read and listen to everything that people are telling you, but in the end, you know your body better than anyone else, and always, check with your kidney doctor. I have one and he is all for my eating program. Take care and bless.
        Last edited by annitta; 06-12-2018, 09:25 PM.

        Comment


        • #5
          Just newly diagnosed with CKD stage 3B, certainly surprised as I had no knowledge of this until I saw an endocrinologist. Trying to find the best diet but hoping for a referral to a nutritionist from my nephrologist. Not much information from my doctor on first visit, since it will be almost 6 months until I see her again I’m on my own. Thanks for this site and whatever help I can obtain from others.

          Comment


          • #6
            Especially need help with my diet and the amounts on salt, Potassium, phosphates, dairy, and protein that is recommended For stage 3B

            Comment


            • #7
              Well it's good to know that I'm not alone. I have permanent kidney damage due to Lithium toxicity. My urine flow and lower back pain are my major complaints. I just saw a specialist four weeks ago since I got out of the hospital in March and he ordered labs. So I'll see him this month for the results and know to what extent the damage is. I am not on any specific diet yet. I'm just beginning my research.

              Comment


              • #8
                Originally posted by RaggamuffinsME View Post
                Just newly diagnosed with CKD stage 3B, certainly surprised as I had no knowledge of this until I saw an endocrinologist. Trying to find the best diet but hoping for a referral to a nutritionist from my nephrologist. Not much information from my doctor on first visit, since it will be almost 6 months until I see her again I’m on my own. Thanks for this site and whatever help I can obtain from others.
                Sounds like we're all in the same boat! Went to a nutritionist, she handed me some info regarding diabetic diet and said keep protein under 44 GM's ( based on 122 lbs). Good luck. I'm happy to have stumbled on to this site

                Comment


                • #9
                  Yes we are all alike I do believe, We all are blindsided that we are CRK and then told to get blood test , but not told what to eat ;just have a worn out copy of diets given to us with no directions gaspur

                  Comment


                  • #10
                    I too recently diagnosed with CKD stage 3 last week. The doctor sent me for more blood work and a triple renal scan. He wants to look at the results of the test before he tell me more,which is not for another six weeks.. Not knowing anything is the scariest part for me. I was taken totally by surprise and knew nothing about Kidney Disease. I have obsessed with reading up on it on the internet.. Today I am going to one of DaVita's kidney smart seminars in my area. I am hoping I will come out of the class with more of a clue.

                    Comment


                    • #11
                      I have Kidney Failure and I'm OFF DIALYSIS by improving my DIET and EXERCISE program.

                      DIET:
                      Your kidney's function is to filter out toxins. When you don't put toxins into your body, then your kidneys don't have to work as hard to clean it out.
                      I follow a Paleo Diet and write a blog about it. www.experiencepaleo.com

                      EXERCISE:
                      Another great, natural way to rid your body of toxins is...exercise.
                      It doesn't have to be intense at all. Simply moving throughout the day and getting your heart rate up and sweating are all GREAT things for your body and help rid the toxins.

                      Take your life in your own hands and you can make BIG CHANGES!

                      FYI: I've been on the Paleo diet for 5 years now and been off dialysis for 4 years.
                      My Kidney Function was 15% 5 years ago and now it is 17% (no joke). I know doctors say it can't get better...but what if it can last this way for the rest of your life.
                      LIFE is worth a shot.

                      Comment


                      • #12
                        Yep, I have Stage III Renal Insufficiency/failure in my book. I have been "treated" by my private doctor for several years and all he does is "monitor" my lab work every 6 months. He had me at Stage II for several years but I went to another doctor and the found that I have Stage III by their lab studies-again, monitoring. So I went to a Nephrologist on my own who did a Ultrasound on the kidneys, lab work and again Stage III. I asked him if I had any dietary restrictions and he said "Salt, watch your salt."
                        At Stage III I think there is more to it than simply "Watching my salt." I expected him to give me some sort of a pamphlet or printed directive on a diet. Am I wrong? I intend to go to a Divita Class very soon. I'm 73 years old and I know some doctors are calloused and feel, "Well he's older and lived his live etc, etc." But I am concerned that no one has offered a diet of any kind sans salt.
                        I almost forgot, what does the Divita Renal Class do?
                        Last edited by Starbrite; 07-28-2018, 02:00 PM.

                        Comment


                        • #13
                          The renal class is a very good way to learn A-Z about how the kidney works...they give you a book to read. One thing when i went was i asked about diet, and they said ask for a referal to a renal dietitian...usually at local hospital...just make sure 'renal'.

                          i post alot on "i've just been dx'd with stage 3 kidney disease information about a lot of stuff...take your 'health into your own hands'. You also need to find out what your numbers are for creatinine level and your gfr numbers. This way you know if you are at stage 3A or B. Ask about your liver, cause kidney and liver work together, blood pressure too.

                          Personally, i eat a plant based diet, no processed foods, no beef, some chicken, fish once in a while. Exercise is also important, just get up and move...walk is all...and if you are over weight try to loose some pounds. Build up slowly drinking filtered water to half your body weight. Before you do any of this stuff check it out with your doctor, and if he's a primary care, ask him to refer you to a nephrologist/urologist.

                          Be Proactive...take care, ml

                          Comment


                          • #14
                            I have just been diagnosed with stage 3 kidney disease and must admit to being very scared. I have many other serious illness too. I am seeing a specialist this week and hope to get a nutritionist to help me with my diet. When I look at the diet I am saddened to find that all the things I like to eat are on the no no list. What is left? Anyway, that's about it for now. I hope somebody can reassure me that I will be able to take control of this problem. Thanks for reading.

                            Comment


                            • #15
                              I was stage IV and changed my diet to pretty much vegan and make parsley water and dandelion tea. My Creatinine went from 2.5 to 1.7..... Still
                              trying to get it it lower.....

                              Comment

                              Back to Top
                              Working...
                              X