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  • 3rd Stage Yes or NO???

    My test results have me confused. Everything I read tells me there's a problem. My neurologist tells me I'm in 3rd stage kidney failure. My primary doc tells me my results are fine, normal, no problem. Is it me or is he in denial? BUN 22 mg/dL




    Creatinine
    1.2 mg/dL

    eGFRnonAfA
    46.1 mL/min












  • #2
    That didn't post well it's ---Creatinine 1.2 mg, BUN 22 mg/dL, and eGFRnonAfA 46.1

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    • #3
      Hi, I'm Shannon stage 4B, your numbers look good, but in stage 3 start really looking at your diet. My Doctors told I didn't need to worry about diet. My cut just would not let me stop thinking about it so I put myself on the Kidney diet. I believe if I would have started when I was at your numbers I would still be in stage 3.. Stage 3 GFR is between 45-59. Please get on the diet. The Mediterranean diet is what I try to follow, but still have to track the 3 P's ( Phosphorous, Potassium, and Protein) depending on your labs, I still watch them even if my labs are ok. Hope I could help in some way. Enjoy life. Shannon

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      • #4
        Thank you so much Shannon. I'm learning about diet and limiting those minerals and protein. I always kept my weight down with a very low carb diet--mostly protein--I have to turn that upside down now. Did you feel sick, dizzy, exhausted, and weak when you were 3rd stage?

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        • #5
          I'm in stage III do I need a kidney doctor

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          • #6
            I found out I was in stage 3 before I had to change my PCP (the PCP that found it decided to step down for a while). My new PCP said he didn't tell his patients till they were in stage 4 or 5. I was sent to my current neurologist Doc and he took over. My new PCP didn't even want to give me a referral to my current neurologist doc. It is amazing to me that a Doc would even want to make that decision for me, when I can make changes to my diet to slow this process down. Listen to your neurologist would be my thought. I am so glad I did.

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            • #7
              It makes me so angry! I could have been really working to protect my kidney function all this time. It makes me wonder what else they don't tell us. They certainly don't believe in preventive medicine. ''Wait until she needs dialysis and then tell her was in 3rd stage for nearly a decade.'' I'm getting a specialist in kidney disorders/failure.

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              • #8
                I just joined the group today. Definitely you need to see a Nephrologist for CKD especially stage 3 and higher ( I see a Neurologist for another health condition but you need to see a Nephrologist).

                I am overwhelmed by my recent news as well and searching for easy to prepare kidney friendly meals. I see they have classes guess I will check that out also.

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                • #9
                  I have been having kidney issues since 2009 and feel that if they had told me that I could save my kidneys for a while longer, then I could have been a much happier person today. I am now at a Stage 3 CKD and have to change my diet and try to raise grandchildren at the same time. I have so much going on that the doctors have just really no idea that they seem to think they have no responsibility to their patients at all. Even the kidney doctor that I am going to hasn't really told me about a diet but  I have looking at the diets with this DaVita and have been doing it on my own in order for my own kidney safety. Looking forward to getting to know to others in the same position as I am in.

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                  • #10
                    I am furiously angry I have CKD Stage 3. Mentioned in Jan. is was Stage2. Relying on labs only. No biopsy, sounds, etc. Read there is nothing I can do about it, that it's all my fault. Have lost 70 #+ since July. He's taking me off weight loss, pain meds anti-depressant and other that COULD? cause renal impairment; and not given adequate, safer meds, or natural vitamins for Severe depression. etc. No body cares. More test weekly, some daily, though not diabetic, or high BP. I'm a hard stick. To ER a couple days ago for MH assessment/admission. "Your'e not sick enough, not risk to self and others. Family Chastising me, punishing me because I posted what I was feeling. Would rather be dead right now. No tx for CKD. Have to give up EVEN MORE foods. Why not do something about it to tx it now, but I know there is no cure. Can't see my meds/notes without SW/Nurse (Monday). Nurse doesn't like me. Try to help here at the Indiana Veterans Home. Appreciate me. Have NA/QMA/LPN background that's not acknowledged. Why can't house Doc tell me the approx. time line till I go? Will choose only Holistic, Natural Tx. Will not go through Chemo/Rad or Dialysis to treat it.

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                    • #11

                      dwmd, I have stage three also, and it has not been diagnosed -- not officially yet. I go up and down around 60 GFR. I feel the same way you do the doctors. I can go back more than ten years to doctors misdiagnosing me or just not telling me something. I won't go into details because it is too complicated, but I think the medications is what did it to me as I have no other reason for it. One doctor said, "you are just getting old." "No, doc," I replied, "it is something that comes with age but not to all people." How can someone who thinks like that get certification is beyond me. Trip to ER is useless. They misdiagnosed me there too.

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                      • #12
                        I am so sorry to hear about what you are going through? I too have only found out that I am in stage 3, I always watched my diet but I am paying even more attention to it now. I was on depression and anxiety meds and took myself of them both, I am trying some natural things and I am hoping to see a change. I will keep you in prayer.

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                        • #13
                          I didn't know anything about kidneys until 2008 when I had kidney failure from an allergic reaction. My kidneys didn't get better and I found myself in 3rd stage kidney failure. The Nephrologist I saw in the hospital just told me I would be on dialysis within 3 years and expected my GFR to continue going down. My best friend was in the process of having a kidney replaced and told me that if I watched my diet I might be able to keep my kidneys longer. I changed Nephrologists (only because of location) and found that he also told me to watch my diet. He set up an appointment with a dietician. I learned what to eat and what to avoid and I have kept my GFR at the same number for 3 years. I am in stage 4 but without the diet recommendations I would probably be on dialysis by now. I just wish more doctors would realize the importance of diet where kidneys are concerned. I also wish they wouldn't wait until you reach stage 4 or ESRD before they offer help. With the help of a dietician I might have been able to keep my kidneys at stage 3 for a longer time.

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                          • #14
                            P.S. As to the second part of your question about sick, weak and dizzy. It took me a while to accept but I have lost a lot of strength. I do try to go to the gym everyday but I can not do what I used to be able to do. I never got dizzy that I noticed but there is kind of a sick feeling all the time, kind of like end stage flu. Just not up to par. My friend who had the transplant got very sick just before her transplant but she was in ESRD so that was to be expected. My Nephrologist says that everyone is different and some can even stay "healthy" in ESRD and some get sick early on. Just get a Nephrologist that you can talk to and one that listens. I get blood work every 3 months and he monitors all my medications and limits what I take based on my kidney function. I can no longer walk like I used to as well and shopping and housework is now done in segments instead of all at once. I also have to have my husband help with a lot of the jobs. It really bothered me at first but you can only do what you can do. I also expect to get weaker as time goes on.

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                            • #15
                              I can so identify with the anger that has been expressed. I have had stage 3 for about 3 or 4 years. My doc was very casual about it and never gave me any idea about how to eat!

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