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  • Drain Pain.

    I've now been on my second attempt at P.D. for a month. The first attempt was just to painful (initial drain was like the electric chair!), and after x-rays they decided I needed the P.D. placement surgeon to go back in and adjust/re-position it.

    The initial drain still sends me through the roof, but I just stand/sit there with my finger on the STOP button...then go to BYPASS.

    The problem is that I get woken up at the end of each drain (5 of them for me). I have to sit up and move over to the machine and WAIT TIL IT HURTS TOO BAD, then hit stop/bypass.

    Does anyone else have to go through this?

    My Dialysis Center is recommending TITLE THERAPY; where it only takes out what it puts in; anyone else on that?

    Thanks,

    Sore Surfer!

  • #2
    Re: Drain Pain.

    My husband is on tidal too. They may have your drain percentage set too high and that is why you are getting the pain.
    Vicky

    Husband, Dave, IgAN end stage
    PD dialysis since March of 2009.

    Comment


    • #3
      Re: Drain Pain.

      Originally posted by SurferDave View Post
      I've now been on my second attempt at P.D. for a month. The first attempt was just to painful (initial drain was like the electric chair!), and after x-rays they decided I needed the P.D. placement surgeon to go back in and adjust/re-position it.

      The initial drain still sends me through the roof, but I just stand/sit there with my finger on the STOP button...then go to BYPASS.

      The problem is that I get woken up at the end of each drain (5 of them for me). I have to sit up and move over to the machine and WAIT TIL IT HURTS TOO BAD, then hit stop/bypass.

      Does anyone else have to go through this?

      My Dialysis Center is recommending TITLE THERAPY; where it only takes out what it puts in; anyone else on that?

      Thanks,

      Sore Surfer!
      Hello Dave!
      I had some pretty intense pain on my drains when I first went on PD, as my catheter got seated, and healed. At times I do still have pain during drains where I have actually bypassed those drains. (You have to be careful doing this, because this can casue an over-fill.) Cramping could be from "positioning" or from being constipated. I sympathise with you about waking up during each of your drains....I had to go through that and it is miserable. I have been very fortunate that PD has worked as well as it has for me. I have done Hemo and prefer PD hands down!!! Hope that you will find some relief!!

      Comment


      • #4
        Re: Drain Pain.

        Originally posted by SurferDave View Post
        I've now been on my second attempt at P.D. for a month. The first attempt was just to painful (initial drain was like the electric chair!), and after x-rays they decided I needed the P.D. placement surgeon to go back in and adjust/re-position it.

        The initial drain still sends me through the roof, but I just stand/sit there with my finger on the STOP button...then go to BYPASS.

        The problem is that I get woken up at the end of each drain (5 of them for me). I have to sit up and move over to the machine and WAIT TIL IT HURTS TOO BAD, then hit stop/bypass.

        Does anyone else have to go through this?

        My Dialysis Center is recommending TITLE THERAPY; where it only takes out what it puts in; anyone else on that?

        Thanks,

        Sore Surfer!
        Surfer Dave, When I first started PD cycler back in 2000, I too had issues with pain, and my therapy was changed to tidal, and I haven't had any pain ever since, I am now in my 10th year of PD. I hope your pain issues are resolved real soon.

        Take Care
        Glo

        Comment


        • #5
          Re: Drain Pain.

          Hi Dave,
          I am so sorry you are going through the drain pain. I have been on PD for 3 months now, and I have had drain pain that I can say is equal to giving child birth and contractions. I pray you find some ease eventually. I am finally not as sensitive, as of two weeks ago. Yes, there is still discomfort, but not sending me crying and through the roof all night long like it was.
          I found that If I move around more during the day, start my treatment earlier in the night, that I am not as dry and the pain is less. I also found laying on my right side while draining brings some ease to the discomfort. (you may have to try the left side, depending on the position of your tube). Also, I was being too cautious of my fluids and was too dry over all. Now that does not mean go and drink a lot, but you might be more conscious of times that it hurts less as to what your intake is, and also what your exercise is. I can not exercise due to other problems, but I am moving around a lot more and I think it helps move the fluid out of my system into the peritoneal cavity easier.
          Some times laying flat on the bed while draining helps as well. I also have problems when I fill each time. Laying on my side eases that for me some. You may be hyper sensitive like I am and it will take a little while to adjust. I wish you the best and let me know how it works out for you.. Try not to give up, as I think this is the best way to do dialysis, at least for me.
          God Bless,
          Always,
          Christine (snitzchris)

          Comment


          • #6
            Re: Drain Pain.

            Another thing I wanted to ad to my earlier reply to you, was that I am on the title therapy. I had a dry day....(no day fill) up until about a year ago. So my initial drain was trying to pull fluid off that was not there...and that is when it started cramping, and I would bypass the drain.
            My hope his that your pain will lessen with time. God Bless!

            Comment


            • #7
              Re: Drain Pain.

              I have been on PD for 4 mths now, 3 on the cycler and I had quite a bit of drain pain for the first couple of weeks but it is only occasional now. I have to change positions sometimes and find a place that works but I usually sleep through the night and maybe wake up just once. I hope it will get better for you too. Good luck, I love PD now.
              [I]Learning to dance in the rain....

              Peritoneal dialysis 1 yr.
              GFR 12
              On Transplant list 2 yrs.
              On hold now for 6 mths. due to heart problem corrected with stents.

              Comment


              • #8
                Re: Drain Pain.

                HI
                I have been on CCPD for three years. In the first few months I was constantly plauged by severe drain pain. I even thought maybe I couldn't do it. Then they put me on a tidal program and the pain became more managable, eventually going away. Now I very rarely have any drain pain.
                Scout

                Comment


                • #9
                  Re: Drain Pain.

                  i had 2 pd cath 1st one lasted for about 8 wks before it caught up in the omentum so i had exploritory surgery. it would take in fluid or come out it was great @1st worked very well. by the time they got in there it was bad case of peritonitis. and infection, they repositon it and well it also was the same after only 7 days and now with a strep infection so they went in and put a 2nd one in. lower and to the right and sure enough with in a wk everything had come back. in spades. so they finally took it out for a yr then i can try again if i want. i have known people who have done it for 10+ yrs check with ur doc to make sure its drain pain and not an infection hope all gets better for u deb: cool:

                  Comment


                  • #10
                    Re: Drain Pain.

                    Thanks for the reply; I think the hyper-sensitivity might be my problem. It's a little alienating when I try to tell the Nephr/Dr. about these things because I always hear that "...nobody has ever complained as much as you..." stuff and how everyone else is "doing just fine".

                    Thanks again for the the suggestions, Dave.

                    Comment


                    • #11
                      Re: Drain Pain.

                      I have been on PD for the past 2 and a half years, i hate everything about it and what it does to my life. Before i started PD after having my catherer put in i got peritonitis (nasty) i woke up with really bad cramps and went straight to my renal unit. I was in hospital for three weeks because of the infection. I wasnt sure if i could even do PD because of the pain i was getting everytime they did a flush or manual fill. It took about 6 months of drain pain at night before it finally stopped. I find sleeping on my side and staying as still as possible while the drain is happening helped. Don't get me wrong the pain was crazy but i am so glad now that i no longer get pain. My main problem is now that i feel alienated from my friends and family. Most of my friends have stopped calling and coming over and my family seem to push me away. Im not sure if it is actually me doing this but i now, apart from work spend all my time at home and don't like going out. I'm starting to feel like a hermit.:

                      Heidi
                      cat 5 end stage renal failure.
                      PD 2.5years
                      Age 31

                      Comment


                      • #12
                        Re: Drain Pain.

                        Hi SurferDave. I'm new here, but I've been doing PD for about a year now. I too experienced significant drain pain when I first started. After about two weeks of trying to just get used to it I let the nurse know that I couldn't take it anymore. It can really drain you (no pun intended) physically, mentally and emotionally. It causes sleep loss and is very stressful, so I certainly understand how you're feeling.

                        Fortunately there's a type of PD cycle called Tidal. This type of cycle does one complete initial drain followed by however many drains your PD requires, but the difference is they're not complete drains. The nurse can have you drain, for example, 95% of your fill leaving 5% and hopefully helping with the drain pain.

                        In my experience with the Tidal cycle I did find that I was finally able to get a full nights sleep (I also began taking 5mg of Ambien as well) and the drain pain subsided. The drain pain will most likely still be there on the initial and final drain but it's manageable.

                        The downside to me of Tidal is that it can leave you feeling very full. This is why I eventually stopped doing Tidal. You could potentially have an extra 1000-2000 mL of fluid that you wouldn't normally have on the regular cycles. For me this was causing too much discomfort so I went back to the regular cycle. And wouldn't you know it after all that time my drain pain has actually diminished significantly.

                        I hope you're able to find a way that works for you. Hang in there. It really does get better even though it may seem like it won't.

                        Comment


                        • #13
                          Re: Drain Pain.

                          i know the feeling! I was trying to work on very little sleep! Every hourf i would be awake due to the drain. i spoke with one fo the Baxter techs who told me about the "Tidal" and it worked like a charm! wish I was still on PD. I've been on dialysis for 10 years. My husband has been very supportive and set my machine up every night for over 6 years. I had both my kidneys out in prepartion for my tranplant. I have Polycystic kidneys. I ;looked and felt pregnant. so took drastic measures to remove the 30 pounds of kidneys. The dr. almost killed me , the operation was very tought! Then i was given too many blood transfusions and am now 91% sensitized. I have now waited 3 more years and have never had a match! We do Home hemo. Because we live in Canada we can't have the NX stage machine as it has not been approved. I'm curious about the machine...We're heading to San Diego in the Fall and I'm trying to rent one while we are there... it would be much easier that having to go to clinics. I have to pay anyways so whatever it costs..it is what it is!
                          I'd like some blood results to see the difference. if anyone could share I'd appreciate it!
                          Thanks Beth

                          Comment


                          • #14
                            Re: Drain Pain.

                            I have been on PD for 7 months now, I was getting drain pain alot. Felt like a knife stabbing me every time. I did switch to tidal and it did help but I still get the pain on initial drain and final drain. I have to have my fingers on the clamp each time. It does it no matter what position I am in. SO, it seems to me that nobody here (mostly) has not been able to stop this. Has anyone had the surgeon give specific advice for this? Has anyone had it re-positioned by surgery?

                            Comment


                            • #15
                              Re: Drain Pain.

                              Originally posted by checkman9 View Post
                              I have been on PD for 7 months now, I was getting drain pain alot. Felt like a knife stabbing me every time. I did switch to tidal and it did help but I still get the pain on initial drain and final drain. I have to have my fingers on the clamp each time. It does it no matter what position I am in. SO, it seems to me that nobody here (mostly) has not been able to stop this. Has anyone had the surgeon give specific advice for this? Has anyone had it re-positioned by surgery?
                              Checkman, my saga of drain pain, began in the year 2000, and it would happen during my first fill, right after my initital drain, and i was told that when i would do my initial drain, that when i would began to fill, that the tubing inside would dangle, causing this excruiating pain, because during the initital drain, it would drain me dry, so my PD nurse, changed my initial drain setup to leave about 200, so that the tubing could flow freely during the filling of the exchange. I see you say that your prescription was changed to TIDAL, but you are still having the drain pain on initial and last fill. The TIDAL should have remedied that, so yes, maybe you need to find out if there is a problem with your tubing and catherer.

                              Glo

                              Comment

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