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  • New to Home Hemo Dialysis

    I have started Home Hemo and I must say its the best I've felt in 5 years! I did PD for three years and had several infections which seemed to recur no matter what i did. I switched back to Hemo with a catheter, it was a real struggle with the centers and their inability to make it a good experience. I think you know what i mean about the treatment we get in center. Well i now do my own therapy along with my wife who is an angel for helping me!. i feel much better and have no worries about water and certain foods. My labs are much better and the flexibility is Great! Also the relationship i now have with my nurse is much better than the center experience. I cannulate myself so that part of dialysis is not a problem for me as in the past. If you want to be more in control of your therapy check it out. Thanks

  • #2
    Hi Clovis I am glad you are having a better time now that you are doing your dialysis at home. I am not at that stage yet but wonder how hard it is to start to cannulate yourself. Did you have a hard time starting? Did you worry about the blood aspect and being at home with no nurses or doctors in attendance? Just wondering for the future. Also how do you get over the large needle aspect when doing it yourself. I am not fond of needles. Take Care

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    • #3
      Hello all: did PD for 6 years and did not have one infection. Had go back to hemo as I had to have stomach surgery and they could not save the PD catheter so I went back to in-center. I am now completing training. for home hemo. I like being in control and cannulation for me is no big deal after P D. Feel much better and can have more foods and fluids. I love it.

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      • #4
        Originally posted by elips858 View Post
        Hello all: did PD for 6 years and did not have one infection. Had go back to hemo as I had to have stomach surgery and they could not save the PD catheter so I went back to in-center. I am now completing training. for home hemo. I like being in control and cannulation for me is no big deal after P D. Feel much better and can have more foods and fluids. I love it.

        is it ok if I ask why you needed to have a stomach surgery?

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        • #5
          Love nocturnal home hemodialysis. It is great and doctor has released me from many medications because labs are great!

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          • #6
            We’re very new here... my hubby recently dx stage 4.. he’s decided PD is not for him because we vacation in the spring for a week and 2 weeks in the fall and his fav thing is the pool and hot tub... there’s none of the with PD. Interested in any help anyone can offer... i am a paramedic so i can help but i do different hours every week so i am a bit concerned about the home HD for him to do it.... how many hours does it usually take or do you sleep? We’ve had our initial education on it and the doc says we’re justvat the planning stage,.. and i get it- let’s get ready while he’s stil asymptotic.... it’s a bit terrifying and I’m concerend about plans we had made for after retiring....

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            • #7
              My son is 13 and in stage 4 but borderline stage 5 at 15%. The nephrologist called today with lab results and advised me to be prepared to start dialysis within the month. We have researched both home and in center dialysis. Because I have 5 children, single parent, and our dialysis center is a 2.5 hour drive, one way, we have seriously considered home dialysis. Can anyone share with me the Pros and Cons of both types of dialysis?

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              • #8
                michelleparadis51 thank you for posting your question. Children do very well on home dialysis because it allows the child and family to continue with their routine and, as you mentioned, it decreases the amount of travel to a dialysis center. Patients on a home therapy are seen at their dialysis clinic twice a month after they complete initial dialysis training. Children are usually reviewed for kidney transplant early on so I would encourage you to have a discussion with your sons nephrologist to determine what your options are related to starting a work up for transplantation candidacy. There are also community services through your local National Kidney Foundation (NKF) which may be helpful with support, information and sometimes they have transportation services that can help during the transition onto dialysis. I would also encourage you to engage the social worker in the dialysis unit who can offer your son support and guidance, identify community support and help to guide you and your family through the transition and ongoing. The social worker can be critical to ensure your sons social needs are met. Peritoneal Dialysis is one home dialysis option that I would encourage you to explore with the nephrologist. Starting dialysis on peritoneal can preserve the child's vessels, may help to preserve residual kidney function (ability to make urine) and may be easier to manage at home. There are also options for peritoneal dialysis catheter placement such as sternal placement which may be a better fit for your son. Traditionally, the PD catheter is placed in the lower abdomen but there are other options for your family to explore. Talk with your sons doctors to see if there are other children and families that are on home dialysis that you could speak with. Having a discussion with another family that is on a home modality will be very helpful. Keep in touch and please continue to ask questions so others can help you and our son on your journey.
                MichelleDaVitaRN

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