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  • What helps me

    I started a blog. Writing about things that are important to me and that I enjoy. From sports to politics and entertainment. It really helps me and gives me something productive to do with my time during dialysis.

  • #2
    I been volunteering at the kidney foundation and has met so many wonderful people who has or gong thru what I am. We tell our stories and laugh alot when we have our meetings. It helps me...I also started a PD Support group with the help other patients and the kidney foundation, It is keep me busy and doing

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    • #3
      Hi, My name is Melissa. My son has been diagnosed with kidney disease. He has been on dialysis for 1 year. He is depressed and not communicating much. I have been trying to encourage him, but he just shuts down. He just turned 40 and is too young to not try. I was hoping to talk to people who really understand what it is like to deal with this disease every day and still have a positive attitude. Any suggestions would be appreciated. Thank you.

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      • #4
        Originally posted by melissacavaliere View Post
        Hi, My name is Melissa. My son has been diagnosed with kidney disease. He has been on dialysis for 1 year. He is depressed and not communicating much. I have been trying to encourage him, but he just shuts down. He just turned 40 and is too young to not try. I was hoping to talk to people who really understand what it is like to deal with this disease every day and still have a positive attitude. Any suggestions would be appreciated. Thank you.
        melissacavaliere Hi Melissa, thank you for reaching out here! I'm so sorry to hear about your son's diagnosis. I'm sure it's hard for the entire family to digest and fully understand. To start, these forums are a great place to find support and gain advice from others affected by kidney disease, especially care partners like yourself. Have you heard of no-cost Kidney Smart classes as well? You and your son can attend or you're welcome to go alone - they're led by kidney disease education experts and are a great opportunity to learn more about CKD, treatment options, the kidney diet and more. You can find one near you here: http://bit.ly/2axNzHn.

        Wishing your family all the best! Please let me know if you have any myDaVita questions moving forward.

        Your community manager,
        Kelsey

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        • #5
          Hey, Melissa! I'll tell you, I've been on in-center hemo-dialysis going on my third year and the first year was definitely the hardest. I know your son is feeling pretty overwhelmed by the idea of having to be hooked up to a machine for a good part of his life, now. It's a lot to take in and adjust to, especially if he had been very active prior to his diagnosis. I applaud you for being concerned and loving enough to reach out for help. A strong support system, such as family, is a big factor in coping with this disease.

          I decided, long ago, not to let kidney disease or dialysis define who I am or what my life is going to be. Getting back to "normal" as much as possible, helped me tremendously such as volunteering in my church. I am an artist and continued being very involved in our local community art center. Since I was already retired from work (because of my health), I didn't have to deal with that issue. If your son was working and no longer is, I would encourage him to find things that he enjoys, or used to enjoy, doing. Even if you think you're too tired, if you make yourself push through the fatigue, you may find that engaging in those activities will make you forget about how tired you are, even for a short while.

          Like I said, the first year is the hardest. Hopefully, once he adjusts to it and realizes that life can go on, even when you're on dialysis, those "poor me" days will get farther and farther apart. They will still come; mine do, but I just remind myself that there are people out there worse off than me... I have a wonderful family who loves me dearly... I have good friends I can still hang with... and I have interests and hobbies I enjoy doing. Best of luck with your son. Just continue encouraging him... but don't preach... and loving and praying for him! Hope this helped!

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          • #6
            Started recently and need help.
            I have been on in center hemodialysis for two months. My beginning was extremely painful because of problems with my fistula. The last two weeks have been pain free and I cannot get past my exhaustion. I can barely get myself to go for a walk. My husband could not be more supportive but I feel sad/bad I need him so much. We are both retired and he gives without complaining. This is just such a tough adjustment. Any help greatly appreciated.
            Last edited by fslevy79; 09-17-2016, 05:47 AM.

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            • #7
              I have been in dialysis since 2010 at age 70. When I was diagnosed, I was comatose for more than a month in a hospital bed. I hear I am in stage 4 CKD. My condition continues to slowly improve. Today I get dialysis in a clinic and go home. I have experimented with frequency healing, and believe it has helped me. In 2006 I took tennis lessons for the first time. I suspect the tennis has helped me. Tennis requires quick rotating movements around the spine. The rapid rotations force circulation through the kidneys. I play with friends and hit a ball against a wall. I have a loving family who support me. There is much to be grateful for. My wife and I do tai chi together.

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              • #8
                Originally posted by fslevy79 View Post
                Started recently and need help.
                I have been on in center hemodialysis for two months. My beginning was extremely painful because of problems with my fistula. The last two weeks have been pain free and I cannot get past my exhaustion. I can barely get myself to go for a walk. My husband could not be more supportive but I feel sad/bad I need him so much. We are both retired and he gives without complaining. This is just such a tough adjustment. Any help greatly appreciated.

                ​Hi fslevy79, welcome to myDaVita and thank you for sharing a bit of your story! Dialysis patients often experience fatigue and low energy. Here's a post from our Kidney Diet Tips blog that may help you find ways to re-energize: http://blogs.davita.com/kidney-diet-tips/3186-2/. I hope that helps and that you and your husband have a great week!

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                • #9
                  Melissa--very sorry to hear about your son's diagnosis. Hopefully he realizes that it's not the end of the world. I'm 38 and have been on dialysis for 3 yrs now. I do in-center hemo. It was tough in the beginning because it is a major life change. I was off work for 2 1/2 months after everything went down. It was still really tough even after getting back to work. Having to change most everything about how I lived my life, diet, fluid restrictions, not having the free time like I had before because of dialysis treatments. Once I became adjusted to my new way of life, things started getting better. I'm grateful for still being alive and although I have days where it's tough to get out of bed from being extremely tired, or not feeling good, I still get up and get through my day. I still work and with that keeping me busy, leaves less time to dwell on everything else. I still find time to do things with friends and family. Both my work and dialysis clinic have been great with working with me if I need to adjust times in order to go do something that I want to do (i.e, theater out of town, football games, etc). I still have very little free time because of work and dialysis treatments (which I've started to refer to as my 2nd job ), but I always find a way to do what I enjoy doing. Your life may not be the same as it was before, but that doesn't mean you can't still live a full and meaningful life. The important things is to find something to occupy yourself, whether it be a hobby, spending time with friends/family or trying to get back to work. Keeping busy has left little time for me to dwell on my issues and limits what I call my "woe is me" moments. Hopefully after some time, your son will realize that your life doesn't have to be over just because your on dialysis.

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                  • #10
                    I watch movies and Tv on my computer. Additionally, I play games on my computer. This helps pass the time. Additionally, audio books pass time.

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                    • #11
                      Originally posted by melissacavaliere View Post
                      Hi, My name is Melissa. My son has been diagnosed with kidney disease. He has been on dialysis for 1 year. He is depressed and not communicating much. I have been trying to encourage him, but he just shuts down. He just turned 40 and is too young to not try. I was hoping to talk to people who really understand what it is like to deal with this disease every day and still have a positive attitude. Any suggestions would be appreciated. Thank you.
                      You know Melissa, I have been, and have experienced the great healing power of group therapy. You may want to get your son to try it. In a good group, with a good therapist, you are not left to your own devices. The people in the group along with the therapist will all challange your son to open up and share his feelings. They say that depression is anger turned inward. Sometimes in group we are challenged to expose that anger, and also fear. It's a great place to start and if you don't like one group there are plenty of others. I would say, from my own experience, that the ultimate goal for your son is to get past the "fear of death thing". This can be the hardest thing but once done, can lead to a whole new world of life and joy that can be experienced the rest of his life. Spirituality helps. NOT religion. Also encourage him to think of others. Focusing in on himself is not good. He should think of others like yourself, and how you feel, and what you are going through. Not only you, but others around him. Maybe, he can do some volunteer work helping others, so he doesn't focus on himself, and he can see that there are others who are in the same boat as he is, and others who are worse off. Your son ought to realize the saying "I didn't know how fortunate I was by not having any shoes, until I saw someone without any feet ".
                      Thank you for taking the time to read my post and God bless.
                      Last edited by FernandoMacias; 11-27-2016, 06:01 AM.

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                      • #12
                        Hi, everyone, have you ever been introduced to periotonal dialysis? It is a form of dialysis but the machine works while you are sleeping. There are no needles. Prior to all this, you just have a little operation in your stomach so that they could insert catherer in your abdomen where a port comes out and this port will be inserted into the machine while you sleep. It's hard to explain but ask your doctor about it. Peritoneal Dialysis. During the day, you are free to move about free of lines, free of anything and can go to work anytime, if you wanted to.
                        Last edited by Melody123abc; 01-13-2017, 07:24 PM. Reason: I have been on it for 5 years and it has helped me cope dialysis. I don't think I could have made it if I was on hemodialysis because of the needles. I feel normal. The average waiting time in th

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                        • #13
                          morning my name is Clark been taking treatments for 6 years i find out Prayer is the answer 2 it all. GoD BLESS ALL

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                          • #14
                            Recently my friend was diagnosed with kidney disease. And recently the doctor prescribed him the dialysis. So my friend was sad . Also another specialist recommended him to buy special ultrasound equipment here https://bimedis.com/search/search-it...ound-equipment which can help him to examine kidneys of my friend.
                            Last edited by daver44; 09-28-2017, 06:15 AM.

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                            • #15
                              My dad was diagnosed with Stage 2 Kidney Disease in May of this year. This past month the kidney disease has progressed to end-stage where he is now receiving dialysis treatments and the nephrologists have advised him that a kidney transplant is the long-term goal. I am so glad to have found this group because as a daughter, I want to do something to help him navigate through the lifestyle change. I also want to implement some of the diet into my lifestyle as I appear to be headed down the same path with my own health.

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