did you know that if you get a transplant they wont take the fistula or graft out!!! - Welcome to the myDaVita Kidney Disease and Dialysis Forums

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did you know that if you get a transplant they wont take the fistula or graft out!!!

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  • did you know that if you get a transplant they wont take the fistula or graft out!!!

    my scumbag doctor and the people at my dialysis center have been on me to get the thing in my neck out and have afistula or graft put in, even though I am scheduled for a transplant at Johns Hopkins, very soon.

    I would be in jail............If they mutilated me like that and then would not fix it, it would be all over as soon a the words left the surgeons mouth. Thats low to do that to someone and NOT tell them it was permanent. Who else could mutilate you and get away with it? THATS NOT RIGHT

  • #2
    I know 3 people this has happened to

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    • #3
      Originally posted by Crankrod View Post
      my scumbag doctor and the people at my dialysis center have been on me to get the thing in my neck out and have afistula or graft put in, even though I am scheduled for a transplant at Johns Hopkins, very soon.

      I would be in jail............If they mutilated me like that and then would not fix it, it would be all over as soon a the words left the surgeons mouth. Thats low to do that to someone and NOT tell them it was permanent. Who else could mutilate you and get away with it? THATS NOT RIGHT
      That's not necessarily true.

      My neph told me a few months back I should have my fistula checked yearly while I still have it to make sure it's working fine. She mentioned that a malfunctioning fistula can contribute to bad circulation as well as heart probs.

      The vascular surgeon explain how a fistula can make the heart work harder than it needs to.
      If a patient has not had any signs of rejection the fistula can be 'tied off " after a couple of yrs, sooner if it's putting a strain on the heart.

      He explained that my veins are far too small to affect my heart. He added that we could discuss tying it in a couple yrs, unless I started having problems symptoms sooner.
      I received the GIFT OF LIFE on Nov 9, 2010 thanks to my wonderful donor Laura and her family!

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      • #4
        Well, my mom had her graft left in place after her first transplant, and a good thing she did, because when the transplant failed about 5 years later, she was able to transition back to dialysis without having to use the dangerous heart catheter again. Keep in mind that MOST transplants DO fail during the lifetime of the recipient.

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        • #5
          Originally posted by dac0214 View Post
          Well, my mom had her graft left in place after her first transplant, and a good thing she did, because when the transplant failed about 5 years later, she was able to transition back to dialysis without having to use the dangerous heart catheter again. Keep in mind that MOST transplants DO fail during the lifetime of the recipient.
          I completely agree with you.
          Unfortunately transplants (not all anyway) last a lifetime.
          My vascular surgeon decided not to tie off my fistula just in case I ever need it again.
          We also have to keep in mind that for some patients, a fistula can strain the heart to the point that it can weaken it.
          I was told that if at some point my fistula becomes a danger to my heart, my surgeon will tie it off in a way it can be reconnected to the artery if needed.
          .
          I received the GIFT OF LIFE on Nov 9, 2010 thanks to my wonderful donor Laura and her family!

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          • #6
            The dialysis center is pushing my husband to get a fistula too. But, he has refused because he has a living donor that we are waiting to hear if she is cleared for surgery. If she is, the transplant will take place in Sept hopefully.
            My husband was supposed to have the transplant on July 24th, but on the 21st the donor surgeon discovered that the donor had TB as a baby and cancelled the surgery. The test to rule out latent TB in the kidney takes 8 weeks.
            So now he has had the perma- cath for 3 months.

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            • #7
              Originally posted by Crankrod View Post
              my scumbag doctor and the people at my dialysis center have been on me to get the thing in my neck out and have afistula or graft put in, even though I am scheduled for a transplant at Johns Hopkins, very soon.

              I would be in jail............If they mutilated me like that and then would not fix it, it would be all over as soon a the words left the surgeons mouth. Thats low to do that to someone and NOT tell them it was permanent. Who else could mutilate you and get away with it? THATS NOT RIGHT
              If you are already scheduled for the transplant, In my opinion, I would not get a fistula/graft. That is if the transplant was coming up in the near future. I would try to preserve the fistula for later use in life if needed. If it was going to be a long time, then you may want to consider it....

              If you already have had a transplant If you have a fistula, there is nothing to take out. They can however tie the fistula off. As another member mentioned, they may due to if your having circulation issues as it could affect the heart.
              Others like to leave the fistula alone, for as you know, transplanted kidneys do not last forever and there is no way to tell how long they will last. Because of this, many recommend leaving the fistula alone if possible to use later if the transplanted kidney fails.
              As for grafts, i would think they could take them out and tie everything off, but not sure. I will look into this. Again, i would think they would want to leave in for possible use later one.
              It would be ultimately up to the patientl if they wanted to undo the fistula/graft after the transplant if having no issues..

              ///M3Riddler
              ______________________________
              PD - 13 Years
              3 Transplants
              In-Center Hemo - 6 Months
              NxStage - Since April - 06
              Facebook: Dialysis Discussion Uncensored

              ________________________________

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              • #8
                Preserved the fistula/graft , in case your transplant failed or any rejection may happen, you can go back to dialysis without making another fistula/graft.
                "If your not willing to risk the usual, you will have to settle for the ordinary"
                Hi guys,Visit my dialysis blog!
                www.Janshideout.com

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                • #9
                  After going through the pain to get a fistula created not once but twice in a one month period, I would fight ever getting it tied off. While I dislike the way they look, I love what they represent. LIFE for someone who may otherwise not have it. My most recent fistula was placed less than 12 hours ago. It is very painful but for now it allows me to live, to see my children grow up, to be me!

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                  • #10
                    Did you realize that they usually don't remove the old kidneys.

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                    • #11
                      during the operation of my fistula , i never felt anything. I was even awake at that time while watching my hands open up.
                      "If your not willing to risk the usual, you will have to settle for the ordinary"
                      Hi guys,Visit my dialysis blog!
                      www.Janshideout.com

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                      • #12
                        Tis true for the reasons mentioned that a fistula is left in place post transplant. In my case it was fortunate as my transplant failed after getting swine flu. Going on dialysis again it was just a matter of showing up and starting up again. Not without serious disappointment of course.

                        Mind you they are recommending a fistula not for their health, but yours. Especially if you are having a translpant, you want to be as healthy as possible. Catheters are problem prone and patients with catheters are much more succeptable to both viral and bacterial infection. Not only for short term health but for long term health too.Higher Kt/V is obtainable with a fistula as opposed to a catheter. You want to minimize the damage kidney failure does to your body.

                        Also, anuerisms form due to a large number of factors. Improper cannulation is one of them, but so is scar tissue formation which occurs over time. It "could" likely be that your fistula may not even be noticable for months to a year or more.

                        Your health comes first!

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                        • #13
                          The longevity of a transplanted kidney is a crap shoot. Just consider the contributors to the forums on this website and you will see wide variation. It's is for this reason that placement of a fistula serves as an excellent "insurance policy" in the event of transplant failure.

                          Generallly, when a transplant fails, it is a fairly quick process and not one that affords the time to get a fistula placed and have it mature in time for use in hemodialysis. Three months is the general rule of thumb for fistua maturity before use. The complications associated with venous catheters and grafts as well as the adequacy of dialysis, have made the arterio-venous fistula the "gold standard" of vascular access. There are kidney failure and transplant patients that have had fistulas in place for 25 years or more.

                          Proper care and maintenance will assure long trouble free functioning of an AV fistula. Individuals with poor circulation, e.g. diabetics, will be at far higher risk of other circulatory complications that include the effect of a fistula on heart function.
                          Last edited by stumpr54; 05-09-2014, 04:42 PM.

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