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  • #16
    I was born with one kidney and it's covered in scar tissue, so I knew this was coming since I was 11; I'm 19 now and been on PD for 9 months.
    Shannon
    KidneyFun // Kidney Korner // Organ donation awareness products!
    If the world didn't suck...........We'd all fall off!

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    • #17
      not always

      Originally posted by shivashankerprasad
      well there must be a cause of kidney failure.
      either it is hypertension or diabetes or autoimmune disorder or defective gene or analgesic nephropathy or pre renal like renal artery stenosis or post renal problems like kidney stone,urethral stricture ,prostate enlargement
      this disease is asymptomatic so people are unable to detect this disese early and one day they find that their kidneys have failed .
      kidneys are powerhouse organs so even 70% failure will not get attention from patients.only when around 90% has failed symptoms occur like nausea and vomitting etc.
      detecting chronic kidney disease is very easy.
      routine urine test and serum creatinine test is used to test kidney performance.
      if albumin is present in urine and creatinine is more then 1.2 mg/dl then u sure have a kidnetydisease.ur neph will test further.
      if u want further information u can contact me on shivashanker.prasad@rediffmail.com
      Hi,
      I kind of disagree!
      Some people might have gotten some kind of virus or food poisoning that was really bad and made their kidneys stop working- that's most likely what happened to me as I used to take extremely good care of my health and made sure I had nothing at all before...and wouldn't even take regular tylenol without going to the doctors as I thought any medications would be bad for you....

      So I pretty much was perfectly healthy one week and ill the next an dthey have no idea exactly from what.
      Also, when they did all my tests they did not find anything wrong exept my kidney function did not come back.

      Even for 3 months afterwards the doctors were not sure if I would get better or not as it is rare to just suddenly have your kidneys stop working...

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      • #18
        Wow your story sounds almost like my brother's, he was really tired and sick at work and they took him to ER.His blood pressure was very high and had to have two stents put in his arteries to his heart and blood transfusion, then kidney failure, now he is on Dialysis, I knew I was going into failure months before and he started Dialysis a month before I did, life can suck sometimes..Sue

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        • #19
          how I found out

          I didn't have much warning at all. I went to my family doc for treatment of what I thought was the flu he did tests and sent me to the ER. They said I was dehydrated and gave me some fluids and Phengren and sent me home after vomiting for 2more days I was admitted to the hospital and started dialysis 2 days later. I think the hardest thing was convincing the ER doc I knew something was really wrong I guess this is the same problem aot of us had.

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          • #20
            Well my story is basically, around may of 06 I started feeling bad, when i mean bad, i had a hard time standing and walking for any period of time and i even collapsed once where I almost became unconcious or was dying? But I didnt, when I went to the ER they said I probably has a side effect of the Rheumatoid Arthritis medication which is an autoimmune disease. I was sent home and then for the next month I gradually felt worse over time.

            Then one day I looked up my symptoms online and sure enough every single symptom that came up was pointing to ESRD. After that I fell into a deep depression. Even contemplated suicide, looked up what was the most painless way to die that wouldnt inconvienence my family at the same time. My mind wasnt thinking right. Also i think alot of that was due to the ESRD since my memory and overall brain function was very low. I was perpetually in a brain haze, like when you just wake up from a very deep sleep except it was 24/7. That was due to all the toxins building up in my brain.

            Anyhow to make a long story shorter, I decided one day I wasnt going to die and went to the hospital knowing full well what was wrong with me and 2 weeks later, left with a fistula and a bagfull of medications. Its been about a year later now and I'm on hemo dialysis 2-3 days a week. Overall my life isnt great but i am glad im still alive and still have goals and plans to meet before that time comes. Its best not to dwell on it from my experience but to just accept that this is how it is from now on. It works for me anyways.

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            • #21
              I knew something was up but put it off until it was too late. Went to the doctors on Valentine's Day this year because I felt like crap and had swollen legs. I could actually feel my blood pressure was high (I could hear it in my ears). Turns out it was high enough to be well in the stroke range so they sent me to the hospital. I was on dialysis about an hour later. My Creatinine level was just over 20 and the BU? was over 200. They told me the numbers were crazy high (second highest the hospital has ever seen) and I shouldn't have been able to walk into the building. So now the machines keep me alive, 3 times a week...

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              • #22
                Sounds like me. I was always in good health.Also "cause unknown". First felt tired a lot and started feeling nauseous a lot too. After a couple of visits my dumb family doctor finally figured out I had kidney failure and sent me to ER for dialysis. I almost died from all the toxins in me. That was in the early '90s. Did peritoneal dialysis for 3 1/2 yrs, got a cadaver kidney in '97. It lasted about 14 yrs. Great years of normal life. Got pneumonia in the Spring of 2011 and lost my transplant. I am back on dialysis...hemo, this time. I like talking to the staff and patients in my center. We learn from each other and they fulfill my life. There are some great people in your center. Don't be afraid to open up to them and share your feelings and concerns and they will come around and start talking. Tell them about yourself. If they can't deal with it...move on to the next person.

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                • #23
                  I've been diabetic for over 20 years and diabetes isn't kind to the kidneys. I woke up one morning in April, urinating blood, and had my right kidney removed a week later due to cancer. On my way home from a routine checkup at my PCP, he called and told me to go directly to the emergency room as I was in full-blown kidney failure. I had a cath inserted in my chest and started dialysis in the hospital the next day. Not much time to get used to the idea, but considering the alternative..... I'm now going 3x in clinic. I chose the earliest time available so still have most of the day ahead of me when I'm done. Still adjusting physically and emotionally, but getting better every day.

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                  • #24
                    I was diagnosed with hypertension in 2008. I took my meds faithfully and only under extreme circumstances did my blood pressure elevate. Fast forward to 2010....... I think the highest for me was 189/.125, which is why I went to the ER.....this was unusual for me. Coupled with a splitting headache while at work, they would not let me go back to work or go home, so my only choice was to go to the ER at Howard University Hospital. I stayed there the night, they did a CT scan, changed my BP meds and sent me home. This was on a Tuesday. I made an appointment with my primary care physician at Georgetown University Hospital for Thursday of the same week, where she drew blood, took urine changed my BP meds again and sent me home.
                    On Tuesday the following week, I get a frantic call from my physician telling me I have to come back in to do labs because they were abnormal. In doing these labs is when I was diagnosed with ESRD. I had no symptoms, no back pain, nothing........just hit me out of the blue. My kidneys had atrophied to 7 centimeters, so bad that they could not even perform a kidney biopsy on them. This was over 4 years ago.

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                    • #25
                      My kidney disease is inherited. My mom went through years of dialysis and 2 transplants. Her father died of kidney failure (and liver failure, probably caused by too much prohibition-era bad booze) when he was 43. His father died of "Brights disease" when he was about 50. I can trace it back even a couple generations further than that in my family.

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                      • #26
                        hi Kathleen my name is Vicky one day I was at work the next day I was on dialysis im so bored you have any advice for something or a hobby im going out of my mind

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                        • #27
                          I was first diagnosed in July of 2010. I was able to hold off dialysis for 3 years but finally in October of 2013 I started.

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                          • #28
                            I'm new also, my name is Gail , I'm 68 years old, my husband died after a long illness three years ago and I have 4adult kids. I thought I had the flu right after New Years this year. After being sick for almost three weeks my family convinced me to go to the er. I really thought they were going to tell me I had the flu and give me some nausea meds and send me home, I was so sick going to the er seemed like way to much effort but didn't want to worry my family. I was very shocked when the doctor told me that I was in critical condition with esrd and had a creat level of 20. I was taken to ICU and spent two months in the hospital. I asked my doctor to try to get me a couple more years since there had been a lot of loses in my family the last few years. I didn't think my children and grandchildren could take another loss so soon. Now my labs are good, I can drive and take care of myself. Tomorrow I'm starting a new in center place 45 miles from my home. They are going to teach me to stick my new fistula and on December 1st I start training for home hemo dialysis. Next goal after doing hhd is starting an exercise routine.... Then going on a cruise in February . My daughter just bought me my very own snorkeling gear, how cool it that! Esrd is not going to stop this old widow lady!

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                            • #29
                              Welcome, Gailr46! Thanks for sharing your story. I'm sorry you had to go through all of that, but I'm glad you'll be able to start home hemo training soon! And YAY, you get to go on a cruise! I'm sure you will have the best time ever. Love that you have your own snorkeling gear. You will love it.

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                              • #30
                                First time I heard that someone didn't know what caused what.....like the chicken or the egg.....I am the same. No kidney biopsy to find the cause...but I assume with family history and autoimmune issues mean that it is autoimmune. So I thought I was the only one who never had a biopsy to find the cause.

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