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  • cramps

    I get leg cramps at nite most every nite but more so after dialysis, is there something that i can get to releave the pain any help. have been on dialysis for 90 day now..

  • #2
    Re: cramps

    I get cramps now & again so get up and walk around. My sister tells me to drink tonic water before bed as its contains quinine I think she said which helps cramps.
    Audrey
    Kidney problems starrted 1980's when I had Saracoidosis
    Recenty started HD at my local renal u Init in Telford.Still having a few problems with my 2nd line.

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    • #3
      Ah cramps the dialysis devil

      If you have cramps after most dialysis treatments it can mean they have calculated your dry weight too low. Suppose they have it at 60 KG. Ask them to try it for one week at 62 Kg. If the cramps go away send me a quarter. If not ask if they think it will help to try at 64Kg.

      The suggestion for tonic water is for the quinine that gives it its funny taste. My cramps were so bad prior to dialysis that I was taking quinine pills. They did not cause the cramps to go away. If they lessened the cramps I would have died if I did not take them.

      I have found nothing that causes them to cease except now that I am on dialysis, if I don't go below my dry weight I am relatively cramp free, Now that is a blessing.

      Here's hoping that they diminish and that life becomes a cramp free pleasure.

      God have mercy on us all

      Cicero
      May God have mercy on us all

      CK

      Idiopathic globular membranous nephritis 1999-2006
      Feb 2006 Dx about 1-2 yrs before dialysis. Dialysis start 6-2006
      Chest Cath 4 mos in center hemo dialysis
      Fistula, button holes, self stick days 07-09 in center hemo
      Graft nocturnal hemo 4Q09 to present

      Comment


      • #4
        Re: Ah cramps the dialysis devil

        What was your pottasium on your last lab values? I was having leg cramps at night and sure enough my potassium was a little low. My dietician suggested I eat peaches, as they will add a little but not too much pot. So far so good.

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        • #5
          Re: cramps

          Originally posted by barman4 View Post
          I get leg cramps at nite most every nite but more so after dialysis, is there something that i can get to releave the pain any help. have been on dialysis for 90 day now..
          Hi Barman, here is a little info to help you understand why you could be experiencing cramps.

          Fluid is a very important factor when it comes to having adequate dialysis treatment.
          Dry Weight - is the weight at which your body has no excess fluid and your blood pressure is well controlled.
          Fluid Weight - is the weight you gain between dialysis treatments from the fluids you consume.
          The fluids consumed between dialysis sessions will build up in the blood and tissues, causing swelling in your ankles and feet. Fluid can also collect in the lungs or around your heart causing shortness of breath or congestive heart failure. Fluid gained between treatments is removed during dialysis. Fluid does not show in swelling or breathing problems for some people, but they have problems getting fluid removed to reach the dry weight during dialysis. If you drink too much fluid it becomes more difficult to remove in one dialysis session. As a result excess fluid gains can cause low blood pressure, cramps, nausea and vomiting toward the end of dialysis treatment.
          Between dialysis treatments, your fluid weight gain should be about 1 to 3 kilograms or 2 to 6 pounds. I hope this helps.
          Glo

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          • #6
            Re: cramps

            I get cramps still, It makes me hate to go to treatment. I am awful though I cant control my drinking as I a soooooo thirsty all the time, and I over drink but it feels so good in my dried out mouth. I am on many water removing meds and I am positive they contribute to my thirstyness. I try gum and sucking on ice but nothing feels so good as liquid going down. I want to drink like a fish, I am angry that I cant. But they try to pull all the water in my tissues and my body gets mad and cramps. If I could control my drinking, I would probably do much better. I know that they have to get your dry weight correct as well or you will get cramps for sure. I wish you luck and I so sorry you get cramps. oh and when my grandma was alive she was on dyalisis, she dramk quinine water and it helped. I have not tried that yet.

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            • #7
              Re: cramps

              Since you have only been on dialysis for 90 days your treatment team may not have determined your true dry weight as yet. By all means mention this to your team at the center. Be patient your body is going through a a terrific adjustment with dialysis. I am not suggesting that this is not uncomfortable to you and that you should expect that this is what you will always feel. What I'm trying to say is that medicine is not an exact science and it tkes time for your team to figure out your speciic needs.

              Always, always ask questions. Don't assume anything is normal. We are all individuals who have different experiences.

              Best of Luck,

              Ladybug14

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              • #8
                Re: cramps

                I get cramps constantly - both on and off dialysis. It has gotten to the point where I feel like it is torture to come here. I have been on dialysis for one year now and have only had a very few treatments where I did not cramp. Also I do not gain very much weight between treatments. Help!

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                • #9
                  Re: cramps

                  Originally posted by barman4 View Post
                  I get leg cramps at nite most every nite but more so after dialysis, is there something that i can get to releave the pain any help. have been on dialysis for 90 day now..
                  May be pulling too much fluid off too fast. reduce the fluid that is taken off per hour. Perhaps your dry weight has increased....
                  ______________________________
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                  • #10
                    Re: cramps

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                    • #11
                      Re: cramps

                      Originally posted by barman4 View Post
                      I get leg cramps at nite most every nite but more so after dialysis, is there something that i can get to releave the pain any help. have been on dialysis for 90 day now..
                      DOES YOUR CENTER HAVE NOCTURNAL DIALYSIS? IF SO SIGN UP AND I BELIEVE THAT YOU'LL FIND LIFE EASIER.
                      CICERO
                      May God have mercy on us all

                      CK

                      Idiopathic globular membranous nephritis 1999-2006
                      Feb 2006 Dx about 1-2 yrs before dialysis. Dialysis start 6-2006
                      Chest Cath 4 mos in center hemo dialysis
                      Fistula, button holes, self stick days 07-09 in center hemo
                      Graft nocturnal hemo 4Q09 to present

                      Comment


                      • #12
                        Re: cramps

                        When the FDA banned quinine for relieving muscle cramps it left hemodialysis patients with few options to ease their suffering. Recently our company developed a solution that might interest you.

                        "Quellitall" is a dietary supplement containing ingredients that have undergone a number of clinical studies, the results of which show great promise for both the prevention and treatment of dialysis cramping. These studies show that cramping frequency can be significantly reduced in both intensity and duration, in as little as 10 minutes after your very first dose. Formulated in consultation with a board-certified medical doctor trained at the University of California, San Diego, Quellitall is produced in an FDA-inspected facility that meets United States Pharmacopoeia (USP) standards for quality and purity.

                        If you would like to order Quellitall, or learn more about it, please visit us online at www.Quellitall.com. I would also be happy to address any questions in this forum.

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                        • #13
                          Re: cramps

                          My doctor recommended vitamin E for cramps. I still get them but they are not as bad and do not last as long.

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                          • #14
                            Re: cramps

                            I still get cramps, after 4 1/2 yrs and i get them in my side occasionally.
                            MAKE THE BEST OF WHAT YOU GOT, BE HUMBLE AND REMEMBER, IT COULD ALWAYS BE WORSE.

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                            • #15
                              Re: cramps

                              There are many subjects in this thread.
                              1, controlling fluid intake. You can get a one quart container and fill it with water and stick it in the frig. Whatever you drink come out of that bottle and then at the end of day or bottle thats it until the next day. This will work and after a year or so this will become second nature and the bottle in the frig is no longer necessary. I've been here for 5 years now and get the urge to drink a whole picture of lemonade at a a time. You just have to control the urge, there is no other way.
                              2. Cramps............This is more complex than dialysis.
                              In some people they have a correlation of the level of potassium. If this is your case then monitor it and control your cramps. But not everybody has this correlation.
                              In some cases quinine helps control them. I've tried that, but to no avail.
                              In some cases it is directly related to dry weight and can be controlled that way.
                              In some cases it is related to the volume of fluid removed
                              In some cases it is not related to anything you can put your finger on, so you have to work it the best you can for yourself and maybe you can then be cramp free.
                              But in any event, good luck with the ESRD portion of your life. It can be fun too.
                              Best regards
                              Cicero
                              May God have mercy on us all

                              CK

                              Idiopathic globular membranous nephritis 1999-2006
                              Feb 2006 Dx about 1-2 yrs before dialysis. Dialysis start 6-2006
                              Chest Cath 4 mos in center hemo dialysis
                              Fistula, button holes, self stick days 07-09 in center hemo
                              Graft nocturnal hemo 4Q09 to present

                              Comment

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