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  • Getting Full Disability On Dialysis

    Just wondering how hard is it to get full disability when you start dialysis ..i am fixing to have to be on PD ..Going to have a Port put in on July22 and wondering if anyone has had troube with SOCIAL SECURITY getting disability..please let me know..thanks

  • #2
    no problem....it's almost automatic
    Whatever does not kill me makes me stronger...Neitzsche
    Flip

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    • #3
      Just wondering if no problem getting disabilily what would you say be the my first step after i get my port in..

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      • #4
        I didn't have any problems. The social worker at the dialysis center can get it all set up and done for you, except I think you have to go to an appt with Social Security, but yeah, what flip said. It's pretty much automatic.
        Shannon
        KidneyFun // Kidney Korner // Organ donation awareness products!
        If the world didn't suck...........We'd all fall off!

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        • #5
          Actually, you can go to www.ssa.gov and complete the application. They will then call you for a telephone interview. You may have to go for an examination by an independent dr., but once you are on dialysis, you are by definition qualified for Medicare. You are also supposed to qualify automatically for full disability, but if the examiner believes that you can do some sort of work they may hang you up. I have many years of education, so I have been fighting them for years. They believe that I should be able to get some kind of sedentary work part time and so will only give me partial disability. I am appealing it, but the courts are so clogged up that I cannot get a hearing until January, 2010. However, I think most dialysis patients don't have much trouble getting both Medicare and disability payments.
          To the stars through difficulty!

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          • #6
            Medicare disability

            Hello. I applied for disability at the beginning of May. I will receive my first check July 17th. My social worker gave me incorrect information when she said it would be back-dated to the day I applied. It wasn't and may never be. In fact, one person at SSA was trying to get me back-dated to December when I was first diagnosed and had to give up working (as a freelance practitioner, I don't get paid if I don't work and have no employer compensation/payment, i.e. I was not receiving anything and was really hoping for pro-rated disability.) I am appealing the start time of my disability--not sure how it will go, but either way, the wait time for disability to start is usually about 3 months after you apply--in New York anyway. My time was a little shorter but it is best to apply asap as others have suggested too.

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            • #7
              Your checks don't actually start until the 6th month after you become disabled.
              Whatever does not kill me makes me stronger...Neitzsche
              Flip

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              • #8
                Hi everyone,

                I was not aware that disability was an automatic thing. Medicare, yes, but disability? Just because you do dialysis doesn't mean you can't work. I had a mountain of paperwork to do, my transplant doctor had to fill out paperwork as well. The unit social worker was not involved at all in the disability portion. Getting off disability is even more of a nightmare. I tried to drop it last year and was accused of possiblity defrauding the government because I wanted off. After months of dealing with the government, I was told to stay on it. For some stupid reason I am trying to get off it again this year and have endured mountains of paperwork and a ridiculous physical where they pulled on my arms and legs and asked me why I thought I couldn't work full-time. Now mind you, I am trying to get off of it. The outcome is yet to be determined. Yes, I was also told I would be back-paid but that was a hollow comment. I had to work for six months at the allowed amount of hours (1/2 my normal hours) and the period came during the Christmas season. Nothing is easy with the government and nothing appears to be the same in various regions even though it should be. Investigate it well.
                "Within every adversity lies a slumbering possibility"
                Linda
                Tx: 7/28/2005
                St. Louis University Hospital

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                • #9
                  I actually did my application online, then did a phone interview and that was it. I did have to go into the office to do the Medicare paperwork.
                  Whatever does not kill me makes me stronger...Neitzsche
                  Flip

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                  • #10
                    I've been on disabilty 3x now. I had more problems getting my Dr. to fill out he paperwork correctly. I never have used SSI funds. Cali SSI for now. No problems yet.

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                    • #11
                      disability

                      There is a book that the examiners go off of and we meet a specific listing. Social Security Disability listing (602.A1) should automatically qualify for disability. I had to get my Senator involved, but was able to bypass an attorney.

                      Every state has different rules, even though they use the same rule book and are a federal agency. Keep calling, emailing and writing and getting anyone you can think of calling on your behalf. The squeeky wheel gets the grease, so to speak.

                      There is a lag time from when you are qualified (the day I started hemodialysis) and when your checks start. I had a 5 month wait.

                      Hope this helps.

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                      • #12
                        The 5 month wait is standard from your official disability date. Even though Social Security is federal, we actually have a state office that makes the determinations.
                        Whatever does not kill me makes me stronger...Neitzsche
                        Flip

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                        • #13
                          Originally posted by mejay1 View Post
                          Just wondering how hard is it to get full disability when you start dialysis ..i am fixing to have to be on PD ..Going to have a Port put in on July22 and wondering if anyone has had troube with SOCIAL SECURITY getting disability..please let me know..thanks
                          Actually if you have a Social Worker she can usually get things going for you and it will be alot quicker for you that way but it does not take that long.

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                          • #14
                            Any one from Arkansas on P D disability..

                            Any one from Arkansas on P D disability..please let me know i am from Arkansas and was wondering how hard to get it started..thanks

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                            • #15
                              Actually not US related but still funny!
                              I applied for diability here and no problems getting that in Canada where i live.

                              Now I was in school and working part time. Had to claim employment income...

                              Now a few months ago I actually had someone from disability call me and say that my job was not real and I was making up my job(not exact words, but they did not seem to beleive such a job really existed).

                              My work is currently mystery shopping telephone stores so I have to visit stores and ask about specific phone models and make sure the displays are set up ok ect....
                              I know it sounds like a silly job, but it does pay ok and is convenient for me!

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