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  • More proof that the renal diet really works

    Hi all, I just got my all my test results back. My GFR is stable at 54 (it was 59 five months ago) and all my other numbers are within normal range. I can attribute all this to being on the renal diet. I went on the renal diet the moment I was diagnosed and have been following this diet religiously every day.

    I thank the Lord for giving me another chance and I thank you all for the information that you have shared and for the renal diet. I am doing so well that I don't have to test again for a year! I am still at Stage 3, High end even! I plan on sticking with the renal diet, hopefully in a year I can report the same news. I did ask my doctor if there was any chance that I had an acute kidney reaction and he said no.

    Thanks again to everyone in helping me learn about this thing, CKD. I know that there is a lot more to learn and share, I plan on taking this gift seriously.

  • #2
    Re: More proof that the renal diet really works

    Wendy that is great news! So happy for you. How are you feeling??

    I got my lab results back too but they didn't tell mwhat my GFR is. I 'm not sure if they use the creatinine from the urine or the serum creatinine to figure the gfr.

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    • #3
      Re: More proof that the renal diet really works

      Hi TwinMom, I am feeling great! What a big difference from last August when this thing hit. I think I would like to try working again. I miss working. I don't know yet what I am going to try. I do know that I don't want to take life too seriously any more.

      Did your doctor specifically ask for the test on the lab sheet? I did both urine (24-hour test) and blood work for my GFR calculation. I don't know the magic combination, maybe chefnancy or cassie might know. I am going to stay on the renal diet for at least one more year, until I get tested again. I don't want to go on dialysis.

      Let me know what your numbers are once you find out. I am interested.

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      • #4
        Re: More proof that the renal diet really works

        Yes, I did the 24 hr. urine and the blood test too. He was testing the amount of protein in the urine, which decreased from last time from 420 mg to 200mg. So I was happy about that. The serum cratinine was .79 and the Urine(lack of better term)creatinine was 1.08. So I don't really know what GFR that would be.

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        • #5
          Re: More proof that the renal diet really works

          There is a GFR calculator that you can access from the home page of this site. You plug in your test numbers, your age, sex, and race (it differs for different races) and it will help you calculate your GFR. With those kinds of creatinine numbers you should be in pretty good shape.
          To the stars through difficulty!

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          • #6
            Re: More proof that the renal diet really works

            I looked on my lab sheets my creatinine was 1.08 too! Which calculated to a GFR of 54.

            Like chefnancy said, we should be good for awhile, hopefully for a long while!

            TwinMom, are you going to stay on your renal diet?

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            • #7
              Re: More proof that the renal diet really works

              Wendy, congratulations!! That is great news.
              ~ddarling~

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              • #8
                Re: More proof that the renal diet really works

                Wendy,

                I am on what I call a VERY modified renal diet. I only limit sodium and protein to around 35 gm per day. I don't really limit phosphorus, but do try to stay away from dairy products. So,I don't really know if you would call that a renal diet or not. I will continue on that track. Are you limiting phosphorus and potassium as well Wendy?

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                • #9
                  Re: More proof that the renal diet really works

                  YAY!!! That is wonderful Wendy!!! I am so happy for you. You take care of yourself, you are doing great!!!

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                  • #10
                    Re: More proof that the renal diet really works

                    Thanks everyone! I could not have done this without all of your help!

                    TwinMom, I would say you are on a renal type diet. Yes, by advice of the nutritionist I am limiting my phosphorous and potassium as well. I need to really watch my potassium levels because I have a quirky heart. At times my heart seems to have a mind of its own. Thanks for the sodium reminder! I had a Wegman's sandwich today and it was loaded with sodium, my bladder is not too happy at the moment. My protein is around 30 mg a day.

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                    • #11
                      Re: More proof that the renal diet really works

                      OMG! I was thought limiting to 50g of protein was severe! Are you guys having trouble maintaining your weight? I'm overweight so losing weight isn't a bad thing right now but it is a little scary for someone who is used to struggling with their weight to suddenly be dropping it like the Biggest Loser participants! I am however feeling MUCH better. Haven't seen my numbers for this month but since I'm in stage 4-20 years post transplant-and my creatinine had climbed up to 3.1 when it had been stable at 2.2 for years the renal diet has really helped. My last labs my number was back down to 2.4 so that was really good news. I'm sure this month they are even better. I'm thinking that maybe my hematacrit has improved as well. The Lord is good and He is certainly faithful. No dialysis in 20 almost 21 years!

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                      • #12
                        Re: More proof that the renal diet really works

                        kdee, I lost a 10lbs when this thing hit. I have gained most of the weight back. But am having trouble maintaining this weight because of the food/fluids overload and will probably lose the weight again. No big deal, I just want to be pain free and keep my GFR in the 50's. Your story is a great inspiration to me. My hope is to never go on dialysis. 20 years for you with no dialysis is great news! My protein is low because if I eat too much protein I have pain. I wish I could eat more, as chefnancy says, it is not a good idea to go too low on proteins, but then the pain, I guess it is all balance.

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                        • #13
                          Re: More proof that the renal diet really works

                          Speaking of protein, when the Neph told MM yesterday he would need to start dialysis soon, MM asked if he could ditch the diet and go have a steak. (tee he he) Neph put up his hands palms toward us and said NOOOOOO, don't change your diet. Your kidney function is not very good and the protein will just increase the toxins in your blood because the kidneys can't flush or process it out.

                          So. That is that.

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                          • #14
                            Re: More proof that the renal diet really works

                            Welcome, Kdee! I'm glad you've had such success with your transplant lasting so long! God is truly good! And yes, always faithful!

                            I try for the most part to stick to around 20 g of protein. I follow Mackenzie Walser's diet plan in his book, Coping With Kidney Disease..........to Help You Avoid Dialysis. My creatinine went from 3.1 to 2.0 in 3 weeks after starting it and my GFR went from 15 to 26! Cutting down on that protein truly helps. But if you go below 40 or so grams per day you need to supplement with only the essential amino acids so you don't become malnourished. I started on the diet last October and am maintaining my improved numbers. Waiting right now for test results that I had taken Monday. The nurse said they'd received them but she didn't know where they were! ACK! LOL! So I wait.

                            I'm thankful you are feeling well and will hope with you for even better test results next time! God bless you!
                            My Writings

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                            • #15
                              Re: More proof that the renal diet really works

                              Thanks for all the input! Where did you get your info? I've seen the dietician twice and as far as I was concerned it was pretty much a bust. She basically told me what to limit my protien, sodium ans phosphorus to and that was it. The only really helpful thing she did was give me the DaVita web address as an after thought. Have any of you ran into this? I go to OHSU on Monday-that's where I had my transplant-so I'll ask them some questions. I'm hoping they will be more proactive in their care. They have been in the past. From your stories it sound like I may need to cut back further on my protien but should have some other nutritional support. Have any of you used Suplena? If so is it helpful? It is so expensive but seems to have a lot of nutrients and calories with only 7g of protien. Does anyone know if medicare helps pay for that type of thing or for other supplements? I'm so glad to hear that the diet is working for all of you! What a relief and encouragement. Since my kidney was given to me by my Mom I want to keep it around for as long as possible!

                              Wendy-i think it was you who said you weren't watching your phospherous really close-you should know that I didn't do that during the time I thought I was "safe" because of my transplanted kidney. Well...my blood work shows some significant bone disease so I would consider the phospherous the "silent" threat of kidney disease. Much more serious because its effects are delayed and hard to reverse.

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