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  • Re: More proof that the renal diet really works

    I have to be honest...why are people getting all riled up over a creatinine that is barely over 1? My Mom was allowed to donate one of hers to me with a creatinine over 1 in 1988! She is still doing fine as am I. Being careful is good but the renal diet is NOT healthy. It is a diet of last resort for people who have no other choice! If you are not stage 3 or worse you should just eat a healthy well balanced diet that its low in sodium and possibly low in phosphorus. Protien restriction can be harmful to the other organs in your body and should only be done if absolutely necessary.

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    • Re: More proof that the renal diet really works

      When I was diagnosed last month, all my doctor told me is to follow a low sodium diet. "follow a heart healty diet and you will stay in stage 2 for a long time" That was it. I have no other information. How long is a long time? I didnt have this last year! my blood test was 59 and urine was 84 so she said " we will call it stage 2." So I got on line and started reading about protien and phosphorus ( yea,..... thats not on the labels) and as you guys already experienced, thats is when the anger set in, I have a grand baby on the way, is this going to hit me fast or slow? THANK YOU ALL for the great info and positive attitudes. I know now I am not going to kick the bucket in 10 years. I know what book I have to go buy TOMORROW and make no more excuses to walk my labrador every day and all will be fine. I also need to learn about the renal diet.
      Jo Zahn
      CKD2 Newbee

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      • Re: More proof that the renal diet really works

        Originally posted by kdee View Post
        I have to be honest...why are people getting all riled up over a creatinine that is barely over 1? My Mom was allowed to donate one of hers to me with a creatinine over 1 in 1988! She is still doing fine as am I. Being careful is good but the renal diet is NOT healthy. It is a diet of last resort for people who have no other choice! If you are not stage 3 or worse you should just eat a healthy well balanced diet that its low in sodium and possibly low in phosphorus. Protien restriction can be harmful to the other organs in your body and should only be done if absolutely necessary.
        Hi kdee, Your right about the renal diet not being a healthy diet for most people. People in all stages need advice from their health care team including a dietician when it comes to the right diet for them. I have often said on here not to be extreme with restrictions on your own as you can become sick by it. Having said that, most of us in the early stages have some restrictions now days. I know my diet has helped lower my creatinine and BUN. I don't consider it a diet anymore--it has become part of my lifestlye in order to slow the progression of ckd. When my labs change, the diet will change but only upon the advice of my health care team. I think most Drs. are telling ckd patients to restrict protein to a level thats best for their needs. For some people in the lower stages, protein is a very big deal and need to monitor it carefully.

        We have come a long ways since 1988. I'm glad your mom is doing fine, but you wouldn't see a kidney donation approval today if the donor had less than normal kidney function. Did they do ultrasounds and all the extensive testing they do today? My mother recently had a ct scan and because her creatinine was just over 1, extra precautions were taken to preserve her kidney function. A 1 hr. procedure turned into a 9 hr. ordeal at the hospital. Happy to say, her creatinine improved a little after being hydrated all day.

        Take Care!

        Toni
        May you always have Love to share, Health to spare, and Friends that care


        Acute Kidney Function Loss 12/07 - GFR 39
        Current GFR 46 - Stage 3 - Controlled HBP

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        • Re: More proof that the renal diet really works

          Originally posted by Jo Zahn View Post
          When I was diagnosed last month, all my doctor told me is to follow a low sodium diet. "follow a heart healty diet and you will stay in stage 2 for a long time" That was it. I have no other information. How long is a long time? I didnt have this last year! my blood test was 59 and urine was 84 so she said " we will call it stage 2." So I got on line and started reading about protien and phosphorus ( yea,..... thats not on the labels) and as you guys already experienced, thats is when the anger set in, I have a grand baby on the way, is this going to hit me fast or slow? THANK YOU ALL for the great info and positive attitudes. I know now I am not going to kick the bucket in 10 years. I know what book I have to go buy TOMORROW and make no more excuses to walk my labrador every day and all will be fine. I also need to learn about the renal diet.
          Hi Jo. Welcome to the forum! As I said in the above post, your diet should be based on your individual labs. Not all Drs. are gung ho about restrictions till things are really out of control. It's best to see a dietician, preferrably a renal one to help guide you. When I was first diagnosed, my GFR was 39 and I was told by all my Drs. that I could stay at that point for 10 to 20 yrs. After getting through the "shock stage" I decided to be more proactive with diet and lifestyle changes. Seeing a dietician was the best decision I made. It jumped started me into a healthier diet but I also learned how much of what foods I can have to help protect my kidneys. Now my GFR stays around 46. Getting copies of labs will help you keep an eye on things. Have you had ultrasounds done?

          Toni
          May you always have Love to share, Health to spare, and Friends that care


          Acute Kidney Function Loss 12/07 - GFR 39
          Current GFR 46 - Stage 3 - Controlled HBP

          Comment


          • Re: More proof that the renal diet really works

            Thank you for your response Toni. As far as getting help from a doctor or renal dietician...in many places that is pretty much a pipe dream! My nephrologist treats sick people, he doesn't keep people from getting sick. As it is there are more people than he can adequately treat in his care. They recently added a third doctor to their practice but even so they are the only office for the entire Central Washington area (as in at least 4 counties probably more). They have one part time dietician who is not primarily a renal dietician. I'm sure our situation is not unique in this country. Thankfully my PCP is willing to tackle my kidney problems as well as my depression and everything else! He unfortunately goes home to India in January...Maybe I'll have to go see him there every 6 months or so... Crazy huh?

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            • Re: More proof that the renal diet really works

              Originally posted by Tonia View Post
              Hi Jo. Welcome to the forum! As I said in the above post, your diet should be based on your individual labs. Not all Drs. are gung ho about restrictions till things are really out of control. It's best to see a dietician, preferrably a renal one to help guide you. When I was first diagnosed, my GFR was 39 and I was told by all my Drs. that I could stay at that point for 10 to 20 yrs. After getting through the "shock stage" I decided to be more proactive with diet and lifestyle changes. Seeing a dietician was the best decision I made. It jumped started me into a healthier diet but I also learned how much of what foods I can have to help protect my kidneys. Now my GFR stays around 46. Getting copies of labs will help you keep an eye on things. Have you had ultrasounds done?

              Toni
              Thank you for your advise Toni. I do have my labs. My gfr is 59 and my creatinine is 84 and 4% urine protien. I had my blood work done 3 times and it always came out to 59. The Dr. didnt say anything about an ultrasound, she said I have to come in twice a year for blood work and the 24 hour urine testing. When I go back I will ask about an ultrasound. What do they look for?
              Jo Zahn
              Jo Zahn
              CKD2 Newbee

              Comment


              • Re: More proof that the renal diet really works

                Hi Jo, With an ultrasound they can see if there is anything abnormal in the anatomy of the kidneys. Some people with ckd might have sm. thin, shrunken or very lg. kidneys. They also look at the renal arteries to make sure there is good blood flow. They basically can see if damage has been done. My Nephrologist used the ultrasound to help confirm the diagnosis. My situation was a little different because my kidney function loss was acute (sudden) in the beginning.

                Take care, Toni
                May you always have Love to share, Health to spare, and Friends that care


                Acute Kidney Function Loss 12/07 - GFR 39
                Current GFR 46 - Stage 3 - Controlled HBP

                Comment


                • Re: More proof that the renal diet really works

                  Originally posted by Jo Zahn View Post
                  Thank you for your advise Toni. I do have my labs. My gfr is 59 and my creatinine is 84 and 4% urine protien. I had my blood work done 3 times and it always came out to 59. The Dr. didnt say anything about an ultrasound, she said I have to come in twice a year for blood work and the 24 hour urine testing. When I go back I will ask about an ultrasound. What do they look for?
                  Jo Zahn
                  When they did my ultrasound they found out that both of my kidneys were very small (about the size they would have been when I was 3 and I was 19) so it can be very helpful in determining what's going on. I was down to a gfr of 3 at that time...I had a transplant 2 years later and here we are almost 23 years after that and even tho my gfr is hovering around 20 I am still a very happy camper! :• 3

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                  • Where do you find the renal diet?

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                    • Originally posted by wwalder View Post
                      Where do you find the renal diet?
                      There is some information from the National Institutes of Health here:
                      http://www.nlm.nih.gov/medlineplus/e...cle/002442.htm

                      and an excellent online nutrient analyzer for renal diet here:
                      http://health-diet.us/renaldiet/

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                      • Can the renal diet work in stage 5?

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                        • did your doctor give you certain daily alottments of sodium , potassium,phosphorus,protein? If so what were they. We were originally given numbers for my father and now 2 months later we were told we don't have to count millgrams of each and just stick to low and medium levels of potassium , phosphorus and sodium foods. confused !!!

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                          • Any word from WRWagner lately?

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                            • Wow. I thank God, for being stage 3 instead of worse. I was just diagnosed, and just feel grateful that I was not too late. I've learned so much from the dietician, but need to know more. If anyone can help, I'd appreciate all the advice I can get. What is GFR? I know there are different types of kidney disease - as I said, so much to learn!! I have to be on a low sodium, low phosphorus low protein diet, my potassium is okay, so I'm fortunate there.
                              Meanwhile - thank you for your posting - God bless and keep you!

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